Find out about organisations, support groups, books, videos and other resources to help you cope with acute myeloid leukaemia (AML) and its treatment.
Cancer Research UK
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website, our news and resources, and our range of health awareness leaflets.
Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.
If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.
Leukaemia support organisations
Bloodwise sponsors research into leukaemia, lymphoma and myeloma. They also provide patient information booklets and leaflets that you can download or order from their website.
Telephone: 020 7504 2200 (Monday to Friday, 9am to 5pm)
Leukaemia CARE is a national blood cancer support charity, committed to ensuring that anyone affected by blood cancer receives the right information, advice and support.
It provides a range of support services to patients and their carers, including a 24-hour CARE Line, information, support groups, patient and carer conferences, and nurse education days.
24 hour care line: 08088 010 444
Tel: 01905 755977
Anthony Nolan runs one of the largest bone marrow donor databases in the world. It has regional centres which are listed on its website.
It is looking for people in good health aged 16–30 to join the Anthony Nolan bone marrow register. In particular, it needs young men from black and minority ethnic communities.
Tel : 0303 303 0303
The National Blood Service runs the blood donation scheme and organises the supply of blood products. They also run the British Bone Marrow Register (BBMR).
Tel : 0300 123 23 23
General support organisations
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments.
Phone: 0808 808 0000 (Monday to Friday, 9am to 8pm; information is available in other languages)
Textphone: 0808 808 0121
Macmillan Cancer Support has a separate section on its website for teenagers and young adults with cancer. It offers advice and support on how to cope with cancer, and the chance to share experiences of cancer with other teenagers.
This is the American National Cancer Institute's patient information on leukaemia.
It's detailed and comprehensive but there are few images.
No. 1 Farriers Yard, Assembly London
77–85 Fulham Palace Road
London W6 8JA
Phone: 0300 330 0803
Email: online enquiry form
Sargent Cancer Care and Cancer and Leukaemia in Childhood merged in 2005 to become CLIC Sargent. It is a charity that provides clinical, practical, financial and emotional support for children and young people and their families who are affected by cancer.
Tel: 020 7612 0370
A national charity providing specialist units, support, education and information for teenagers with cancer and their families.
The Teenage Cancer Trust also funds research into young people's cancers. It holds annual conferences for teenagers with cancer and the health professionals who look after them.
Books about leukaemia
ED Ball and A Kagan
Jones and Bartlett Publishers, 2013
An American book written by a patient and a doctor. It provides clear information about the treatment for leukaemia and covers areas such as quality of life. As it is American, some of the information may not be relevant to a UK audience.
Tariq Mughal and John Goldman
Co-written by a leukaemia specialist, this book is intended for patients and relatives, as well as GP’s and other health workers. It covers the causes and treatment of leukaemias.
This is a book for younger readers. It is produced in conjunction with Leukaemia and Lymphoma Research (now Bloodwise). It addresses both successful treatment and the possibility of dying from leukaemia.
K Chilman-Blair and J Taddeo
Medikidz Publishing, 2010
A comic style book aimed at children aged 8 to 15. You join Richard on his tour of the human body as he learns about leukaemia and its treatment and side effects.
Booklets and factsheets
Lost for words - how to talk to someone with cancer
Sexuality and cancer
Understanding acute lymphoblastic leukaemia
Understanding acute myeloid leukaemia
Understanding donor stem cell (allogeneic) transplants
Understanding cancer research trials (clinical trials)
Talking to children when an adult has cancer
Talking about your cancer
Coping with hairloss
Help with the cost of cancer
Newly diagnosed with a blood cancer
Adult Acute Lymphoblastic Leukaemia (ALL)
Adult Acute Myeloid Leukaemia (AML)
Acute promyelocytic leukaemia (APL)
Acute Lymphoblastic Leukaemia to 25 years (children, teenagers and young adults) : UKALL 2011 Trial
Childhood Acute Myeloid Leukaemia
Bone Marrow and Stem Cell Transplantation
Leukaemia and Related Diseases
Dietary advice for patients with neutropenia
Down's syndrome and leukaemia factsheet
The Next Seven Steps – long term recovery after a stem cell transplant.
Ben's stem cell transplant
Donating your stem cells to your brother or sister
Jess's bone marrow donation
Total body irradiation
Stem cell transplant. A guide to stem cell transplantation for teenagers and young adults
Videos of people's stories
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
Find local cancer support and information services
NHS Choices has a service that tells you about local information and support.