Hi Ryan, I want to welcome you to the forum, although none of us would choose to be here for the reason we are here. I'm not familiar with your type of cancer, but as I saw no one had responded to your post. I just wanted you to know that someone did read it so you wouldn't think no one was watching. I'm sure you will receive a reply soon from a poster who knows something about your type of cancer. People on this forum are very caring and supportive, so don't give up. If you would like to communicate with the nurses who are very knowledgeable, you can post in the section, "Ask the Nurses" or if you are in the UK, you can phone them for free. They are only available days Mon. to Fri. though. You can find their number on the site here. I am not familiar with it because I live in Canada.

Hank tight Ryan, and someone will be along soon to respond.

Take care.

Lorraine  

Hi Ryan, I see you've been welcomed by the lovely Lorriane. Sorry to read about your diagnosis and it's a good idea to prepare some questions to ask your medical team. 

There are a couple of threads on the forum which may put you in touch with people who have had a similar Cancer diagnosis to you - Nicola started a thread 'Tongue cancer diagnosed 2 days ago' and this is still active with the contributors sharing valuable information and support with each other. 

I know the moderators read posts and one of them may also be able to suggest other threads and link you to them. 

Lorraine has also suggested the good idea of posting in Ask the nurses / or contacting them directly by phone. 

I hope you find the answers you need Ryan and take careJo xx

Hi Ryan

Welcome to Cancer Chat.

Here is the discussion Meerkat@65 talked about in her post.

If you post a message then you may get a response from someone who has posted on the thread who has similar experiences to you.

Our nurse team can be contacted on: 0808 800 4040, Monday to Friday, 9am to 5pm.

Calls are free from UK landlines and most mobile phones.

Please come and chat whenever you feel the need. As you can see, the members here are very warm welcoming and supporting.

Best wishes

Jane

Hi Ryan, 

Sorry to hear your resutls were positive. I know it can be a shock.

Did they give you any information about the stage of it? Its also hard to remember what they say to you.

At your meeting they will tell you how they are going to treat it. Once you know the stage you can get an idea of what will happen next.

As others have said what ever stage people on here have all been though it and will know what to expect.

Write down any questions you want to ask as you will likely forget when you go in there, I asked about recovery time, what effect it would have on eating etc.

The best of luck to you, please let us know how you get on.

Firstly i would like to say thankyou to those that have taken the time to read and reply to my post.  I have honestly been finding it all very overwhelming, every one has said to write down questions but i just dont know where to start... they have said that it is a moderately developed squamous cell carcinoma  of a minimum depth of 5mm. I dont know what it means right now but bring on tomorrow and my mdt meeting, the hospital have been great sofar so i hope it will be clearer afterwards. thanks for the recommendation of  nicola's thread i think it will help to read it. 

once again thank you  ryan

Hi Ryan,

I hope tomorrow's meeting brings you the answers you need. Do you have anyone to take with you as sometimes, an extra pair of ears is a bonus. A companion could also make notes for you. Don't feel afraid to ask the doctor to explain things again if you don't fully understand what's being said. I ask to be copied in to letters that are sent to my GP or other medics dealing with my case and often this clarifies what's been said in the consultation. Maybe worth asking for a contact number (specialist nurse, consultant's secretary etc) in case you find questions occur to you, after you've left the consultation room / hospital (they invariably do!) 

Please let us know how you get on. Take care, Jo x

hi jo thanks for the message luckily I have got my parents coming with me and already got a note pad incase i need it (sure I will, if i can only manage to remember long enough to write stuff down) and that's a good idea to be copied in on letters/emails being sent  thanks  my memory seems to be shocking at the moment just remembering when the consultant confirmed it was cancer that sentence is stuck in my mind. 

well next step back to the hospital I'll keep you posted 

once again thanks 

ryan

Hi Ryan,

Hope your appointment was ok. Good to know your parents were able to go along with you.

I think memory problems are commonplace with folks on the forum - I used to blame my memory lapses on the chemo (chemo brain is a known phenomena!) but as it's been a year since my last infusion, not sure I can blame my shocking memory on that anymore ;) 

Take care, Jo x

hi there jo

yeah the meeting went well i think trying hard to remember as much as possible. they did say that it doesn't look like it has spread  anywhere else which is great news but i will be having a neck die section to remove the lymph nodes and unfortunately the scan shows that  the lump is larger than initially  thought so i will be loosing more of my tongue. i was hoping for a date for my op but still got to wait for that but i have been asked to attend Norfolk and Norwich  hospital  next Wednesday where they will do my op and fingers crossed  get the date then. i have got to say the whole team dealing with me have been great and putting me at ease explaining  everything. seems like it is just a waiting game until then now and dont worry  i wont tell anyone about your memory lol

look after yourself  ryan

Hi Ryan, 

I read about your situation and I am really sorry to hear about it, but some of us are really unlucky in life. I hope everything goes well with the operation and hope that lymph nodes are clear as it will be some good news if they are.

best of luck 

nadire