Hi Carosean, 

I know you've already received a reply on a similar post you made about this the other day, but as it's a rare cancer I just wanted to make you aware of the rare cancer alliance and livingwithnets websites in case you wanted to try connecting with others on there.

There is a new discussion on the forum about NETS that you may want to join in on as well so I'm going to include a link to it here so you can have a look.

I hope this helps Carosean and I wish you all the best with your treatment when the time comes.

Kind regards, 

Steph, Cancer Chat Moderator

Hi Carosean

I was diagnosed with the same cancer February this year following the removal of my appendix. I am having Open Cyto Reductive Surgery with HIPEC at The Christie in June. I don’t really know much about this cancer either. I would like to know the survival rates and whether I will ever be told I am cancer free. A friend of mine also haS NET disease and was told by her doctor they would never be able to confirm she was cancer free. 

What treatment are you having?

i look forward to hearing from you 

shelle50

Hi , I was diagnosed with having a goblet cell carcinoid tumour 3 weeks ago after having my appendix removed as it had ruptured , I had a ct scan last wednesday to see if the tumour has spread and now I'm waiting for results and a consultation..... I'm petrified as the research done for this type of tumour isn't telling me much that I understand .