Hi carosean1,

Welcome to the forum.

It's great that you want to research it, but try not to use Dr Google too much. You can talk to your doctor and we have some information here about what happens after treatment. 

Hope this helps,

Moderator Anastasia

Hi carosean1,

i to had my appendix out at the end of January.

it had ruptured the previous January and they would not take it out. After fighting with them continuously the surgery was done and a carcinoid tumour was found.

i do not know much about it and they are removing a part of my bowel and limp nods on April 26.

there has been no talk as to treatment beyond that. So I am thinking that I maybe ok after the surgery.

i can offer little info at this time about anything lol

but i can be supporting forsure

Hi sorry only just seen your reply, hoping your surgery went well and your recovering well, what did you have removed during op

I'm awaiting my preop and everything seems to be taking forever at the moment x

Hi Carosean1

I just wondered if u had your surgery and recovered well? I also wanted to ask if u needed further treatment? 

I had appendix out in June, surgery beginning of September for the same. It had migrated to my lymph nodes. I am just waiting to see if I need further treatment. 

Hope u are doing well regardless.  I've tried not to read any information about this very rare thing so taking it as it comes.

Warmest wishes

Hi misspentyouth

Sounds like u had a nightmare with your diagnosis! My appendix also ruptured in June and I had to have bowel resection and lymph node removal, it had migrated to the lymph near my appendix.  After the operation and analysis they found it in just 3 lymph out of 36. I am hoping this is a good sign! 

I just wanted to say hello to u and Carosean1 as another support.

Warmest wishes

X

Hi I had my appendix out in January 25th results showed goblet cell cancer , on 25th February I had some of my large intestine out with some lymph nodes as well . Surgeon said some cells found at the (removed) appendix site nowhere else , 6 weeks later I was then told all good no  further action required. Unfortunately they messed up and I was contacted in June saying , I had been missed , a clerical error and I needed Chemo, started chemo in July , still receiving treatment, I’ve asked the doctors a lot of questions, and though they identified the goblet cell tpye they don’t seem to know a lot about it , I’ve googled but a lot of terminology is purely medical , I’m sorry I’ve not been much help , if I find out anything useful I will keep you posted, likewise please post anything you find out , in plainspeak if possible,  don’t give up , cheers 

Hi I had Goblet carcinoid March 4years ago, I received Hypec Chemo ask your doctor about it, or google it to have a look,I became cancer free in the Sept,the same year,It’s crazy that this cancer is so rare and not a lot of hospitals understand or know a lot about it, however for me I was treated at a hospital in Manchester England, I had a 12 hour surgery they took a lot of my bowel i also had an hysterectomy and my overies remove, and my tummy button along with a few other bits of me. After surgery I began the recovery I thought with the Hypec chemo I would lose my hair but I didn’t, my immune system I didn’t to be honest I only had a sore mouth, but I did feel like I’d been 10 rounds with Mike Tyson, to be expected after 12 hours in surgery, my recovery was great I was so positive always smiling though I felt rubbish I pushed myself everyday, I was so thankful I was alive, The word cancer is enough to scare anyone, so I gathered my family and said if I smile you smile please don’t shed a tear foe cancer, so we had a plan to help each other with smiles, easier said than done you may be thinking, it was the best thing we all did and it helped us all through the worst most fearful time ever in my life. So if you are reading this don’t shed those tears keep smiling

Hi. I'm sorry to ask but do you know at what stage your cancer was at. I've just got back from the oncologist with my mom who has been told after her op that her cancer is stage 4 (she was misdiagnosed for 18 months) it spread from her appendix to her bowel and ovaries. They have removed as much as they can but she now needs chemo but has been told that she will never be cancer free and will live around 2 years

Your post has filled me with some hope that she may be cancer free one day. Also were you treated on the nhs or private as with this type of cancer being rare they dont seem to know much about it.

Thanks 

Hi Wendy,

It sounds like my wife has a very similar condition to what you descibed. She has just had an almost repica surgery. I am keen to find her the best specialist casr for chemo and ongoing oversight. Would you recommend the hospital you had your treatment? Most grateful for any help at all.

Fantastic to hear you story and very uplifting and encouraging.

Thanks in advance.

Hi Wendy,

I just wanted to come back and thank you so so much for writing this post. Without the knowledge of your surgery things would look so different for me right now! 

I am 2 weeks post cytoreductive/hipec surgery, , I have had exactly the same surgery and recovering well. 

When I saw your post I went back to my lovely oncologist in Leeds and asked if she knew about this surgery and maybe I needed it too, she reached out to two hospitals and one decided to take me on. The crazy thing is that it isn't standard care to be referred, my oncologist had never even heard of the surgery! She said I have paved the way for anyone presenting with appendix cancer from now on, they will be referred to one of the excellent centres that deal with this type of cancer. Thank God! 

So yes I am so much more positive about my future and to anyone else diagnosed and reading this please please ask to be referred no matter what stage you are at. 

Warmest regards xxxx