Hi Freedom and a very warm welcome to Cancer Chat.

I am so sorry to hear about your diagnosis and to learn that it is currently inoperable. Can I suggest that you use the search engine on the blue banner at the top of this page?  Insert your condition and you will find many previous posts on this topic.

I sincerely hope that immunotherapy is helpful in shrinking your lesions. Please keep in touch and let us know how you get on. We are always here for you whenever you want to talk.

Kind regards,

Jolamine xx

Welcome to the forum Freedom1479 although I'm sorry to read about your situation as well as the difficulty you're having trying to find information about your diagnosis.

We do have some general information about neuroblastomas on our website here but I think it would be best to give our cancer nurses a call as they will be able to help point in the right direction for resources and connecting with other adults who also have this diagnosis.

Their freephone number is 0808 800 4040 so if you have some spare time today try and call before their lines close at 5p.m as they won't be back in the office until Monday.

I hope this is of some help and like Jolamine has said above, that the immunotherapy is successful in shrinking those tumours when the time comes.

Kind regards, 

Steph, Cancer Chat Moderator