I was diagnosed with ess August 2015 after having a total/full hysterectomy June 30th because of endrimetriousis.. I was 47 years old I had 3 tumours removed 1 very large grapefruit sized that wasn't cancer. The stromal sarcoma was found at the top of my womb but contained I was very lucky as my gynecologist went sick for my operation so I had the option to put it off for several months or have a different doctor from another hospital do it ..I opted to have it done so I was very lucky indeed xxx