Together we will beat cancer

Donate

Worried Sick

19 Sep 2020 09:52

I'm 41 and have severe Diverticular. I've had flare up for the last few weeks and saw a consultant privately last week who referred me for blood tests along with a Colonoscopy and MRI.

The GP called me yesterday to say the my CA125 was 250 and has referred me for ultrasound. 

I've read though that your period can affect the CA125 and the blood test was taken on the first day of my period. Also Diverticular flare ups can affect it, which I have 

So how worried should I be?

I have two young children so putting a brave face on it all.

I do have low abdominal burning but have always put that down to my bowel issue. 

Thanks for taking the time to read this xxxxx

Worried Sick

21 Sep 2020 10:30 in response to K3lly

Hi K3lly,

Welcome to Cancer Chat. I can imagine this must be a little unsettling and it's never easy with this uncertainty - however to be honest I'm not able to advise on your question; it's only really by sitting tight and waiting for results from your scans that you will be able to find out more and have an opportunity to discuss with your doctor.

Hopefully it won't be too long before you get your appointment and the results, and this should provide the information and any next steps you need.

Try if you can to keep busy and distracted in the meantime, to try to ease any worries.

Wishing you all the best,

Ben
Cancer Chat Moderator

Worried Sick

11 Dec 2020 13:08 in response to K3lly

Hi Kelly

Having similar issues and just wondered how you got on? Hope you are well x

Worried Sick

11 Dec 2020 13:32 in response to Freckles88

Hello, I'm sorry to hear. Please try not to worry though I completely understand that's so much easier said than done. 

I had a transvaginal scan and all was clear. They found a little cyst that's being monitored every 6 months. 

I and the ca125 repeated 6 weeks later and it had come down from 250 to 13

They said that my period and bowel disease had affected it and also said the ca125 is much more unreliable in pre menopause.  

I hope you'll be ok and that this gives you some comfort xx

Worried Sick

11 Dec 2020 13:44 in response to K3lly

Hi Kelly,

Thanks you SO MUCH for responding. It genuinely means the world to me. I find myself trawling around and not able to see what people's outcomes were and getting myself into a big state. So, truly, thank you.

 

Can I ask, did you have any bowel investigations? They're talking about sending me for a colonoscopy now because of my bloating and abdo pain and I'm worried sick again.

i had an ultrasound this week and thank goodness it didn't show anything nasty. Im Still Unbelievably relieved about that but alsO still very worried about this ca125 and all the severe bloating I'm having. Until now I've never had ibs or anything so it's all just come out the blue and if it wasn't for that marker being high I probably wouldn't be as worried. I do know it can be up for other reasons though. 
 

it's so nice to hear yours went down and I'm so happy you're well xx

Worried Sick

11 Dec 2020 13:57 in response to Freckles88

I'm so glad your ultrasound was ok. 

I'm sure that's a real positive and I know what you mean about scrolling. I did constantly!!

I've had a colonoscopy and Lower bowel MRI. I have diverticular disease and IBS and am always swelling up. Please try not to worry xxx

Worried Sick

11 Dec 2020 14:04 in response to K3lly

Thank you again. You've genuinely made me feel a bit better and hopeful.

I will update you when I finall get some results. Take care and thanks again x

Worried Sick

11 Dec 2020 14:13 in response to Freckles88

Please do! I'm sure you'll be absolutely fine!

 

Take Care x