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Wondering if Myeloma?

18 Oct 2019 15:15


Looking for advice/feedback.  I'm due to have a Bone Marrow Biopsy, full body MRI/skeletal survey and a number of blood tests (all from what I can tell possibly looking for myeloma).  I've had a slew of odd blood tests for a number of years (early on false positive results for Lyme Disease, Lupus Anticoagulant, etc.).  In the last 3-4 years, my GP has been monitoring my blood tests as I showed an elevated ESR, low RBC and elevated MCV/MCH and have now been seeing a heamatologist for the last year or so.  

My IgM level over the last year has been slightly elevated 3.68, continued low RBC, high MCV/MCH as well as low Albumin Calcium, low Alpha 2 globulin and low Beta 1 & 2 globulin.  All other levels on tests appear normal.

Looking up all the tests as well as some of my levels, I'm a bit nervous and more so waiting to have these new tests done (and then waiting for results) is really nerve wracking.  Appreciate anyone's insight on all of this.  Honestly would just like to find out what is going on and start to treat it.  

Thanks Happy

Wondering if Myeloma?

20 Oct 2019 16:27 in response to Datmac

Welcome to the forum Datmac although I'm sorry for the reason you're joining us.

Unfortunately we can't tell you what this all means but hopefully the tests you're going to have will get you a step closer to finding out what's going on. 

Hopefully some of our members who have had the same tests or been in a similar situation will share their thoughts and experiences with you soon but our cancer nurses are available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m if you'd like to talk things through with them as well.

We'll have our fingers crossed for good results Datmac.

Kind regards,

Steph, Cancer Chat Moderator