Why does he look so well ?

My husband had a seizure 4 weeks ago

and he's been diagnosed as having cancer of the unknown primary with brain metastasis but he looks so well I feel like I'm in denial slightly as everyone I ask doesn't seem to give a straight answer however much I know it will hurt me . 
The internet says it's bad and I get that there's no denying that but I feel like they're talking like it's game over I know people don't survive brain mets but I feel

like I'm waiting for symptoms? 

  • Hi, the human body is a funny thing.

    someone Cancer is so obvious and then sometimes it

    goes unnoticed.

    ive got breast cancer and I feel so well. I'm awaiting chemo which was a huge shock but feel like a fraud.
    I feel so well and I've been told "you can do this" "your so strong " When mentally my All I want to do is curl in a ball and cry some days.
    I've be been told I need to let my body heal from surgery etc and I just get want to get on with living life -and get back to normal.

    I've had a little experience with Brain Mets -limited story.

    My mam had secondary brain mets- primary lung cancer.  But had other underlying issues ( she had Msa /similar to parkinsons. Undiagnosed Hydrocephalus. previous undiagnosed stroke) so can't really offer you much advice or signs to look out for. My mums quality of life was rubbish for like 2 years before her lung cancer diagnosis-due to her frialty she wasn't offered any treatment.

    My dad has prostate cancer which had spread to outside the prostate -and he had limited palliative treatment. We also asked for life expectancy to try and plan ahead he was told 2-3 years and had 8. So that's not always a true guide.


    I suppose it depends where about in the brain the issues are. Different lobes if the brain do different jobs. 
    Are the doctors interesting in finding the primary cause?


    Do you think he would accept treatment /surgery if it was offered?
    however if people have secondary cancer then treatment is sometimes more likely to be to extend life expectancy  /quality of Life and not to cure. 
     

    Are you aware of what to do if he had further siezures at home?  
    Can you look into getting any help. 
    Benefit? Carers -sounds awful planning ahead but sometimes applying for things takes ages to process.

    Much love
    Efffie x
     

  • Hi Effie , you've had so much to deal with bless you . He's having gamma knife surgery on Thursday if he's suitable and we are seeing the consultant this Tuesday so maybe we'll know more then . My husband says exactly the same thing he feels like a fraud!! I think that's why it's so hard to take it in . 
     

  • I'm so sorry about your husband hope things go smoothly for him and you,. Cancer doesn't just affect the person with it unfortunately it affects family and even friends even though they don't have it.

    When I was diagnosed (Feb 2016) I've got prostate cancer gone to lymph nodes spine ribs pelvis and a lung , only reason i was diagnosed at all was I kept being Sick turned out to be a hiatus hernia, but blood tests showed something else wrong so more tests and soon diagnosed, but same as your husband felt fine still working metal fabrication and welding firm,im classed as palative care, just continues treatment, most of the time im fine,im on permanent hormone therapy and had chemotherapy at beginning .

    Just lately hormone therapy been changed to keep cancer count down so few side but manageable.

    i was given 5 years I've been here nearly 6 now,im a part time carer for my darling wife she has Alzheimer's and Parkinson's plus other problems, we've been married 50 years this December ,so not doing bad.

    Again hope things go well with your husband.

    Keep positive .

    Billy

  • Thank you Billy it's just seems unreal I just keep looking at him thinking they've made a mistake it's bizarre . 
    you seem to have a lot of work on your hands bless you . 

  • Cancer does this to you my dad appeared to have cancer for years now I look back but he was diagnosed and 5 week later he died even when he was diagnosed a week before his death I said he looks like he's getting better but he died from the cancer there were days my dad was very active and looked well