Hello
My wonderful husband is nearing the end of life. He is still completely alert, up and about, and smiling. But pretty much house bound and eating/drinking very little. We've been told he has anywhere between 2 and 4 weeks, but the District Nurse seemed to think he could have longer. At the moment he is pain free, but suffering quite badly with phlegm, coughing and last night some sickness (he has oesophageal cancer).
Steve has elected to die at home and I am trying to support him in that last final wish. We live in an old Edwardian end of terrace so when the hospital bed arrives it will have to go into the front room, (it won't go up the stairs) and our existing furniture moved out.
We have been assured by all our medical team and the District Nurses/Macmillan nurses etc.that they will keep Steve as comfortable as possible and manage his pain and symptons. However I am concerned that we are ultimately taking a risk, one I am not sure I am comfortable taking. What happens if we can't get medication or a nurse to him fast enough? I read today on the BBC website that Rachel Blands (of YOu, Me and the Big C fame) husband said she really struggled in the last few days of her life and had they known it would be such a struggle, he feels sure she would have elected to go into a hospice.
My other fear, very selfishly, is having to live in the house that Steve died in after he has gone. I worry I will be haunted by memories of a painful struggle if that were to be the case.
Does anyone have any help or advice for us?
I should we add have had BRILLIANT, FIRST CLASS care by the community team thus far and I know our hospice (Haywards House in Nottingham) also have a fantastic reputation.
THanks everyone.
Sending love to you all