This is a bit long winded so bare with me, I’ll try and keep it as short as possible.
So basically, my Mum has been in hospital for a few weeks due to a spinal fracture. Whilst she was there, she was given a chest X-ray and was told there was a shadow on her lung. She was given a CT scan and was told that the shadow was a tumour and that they thought it had spread to her bones (hence the reason why she was in so much pain with the fracture). She was not given an actual diagnosis as they wanted to send her straight to a cancer centre for 5 fractions of palliative radiotherapy on her spine to help reduce the pressure it was having on her spinal cord (at this point, I should say she’s been immobile for almost 6 weeks).
Fast forward to this week, she has completed the last fraction of radiotherapy and from there was supposed to be going back to the original hospital for a proper diagnosis (EBUS/bronchoscopy or something along those lines) so then we would find out what the prognosis was and then aim to get her back home and in as much comfort as possible for how ever long she has left with us. However the last few days, my Mum has been shutting us out which is uncharacteristic of her. We all know it’s terminal so it’s not as if she has anything to tell us that we don’t already know, but the odd thing is, she called me earlier to say she wasn’t going back to hospital and that she’d spoken to someone from Marie Curie and that she was going to a hospice instead.
Now I know she is dying but I thought at this stage, it would be a diagnosis and palliative care set up but she’s talking about end of life care already. Have I missed something or is this her telling us she’s about to give up? I mean she’s not even been given a diagnosis yet!!