Wait times for lung biopsy appointment?

Two weeks ago my dad had a CT scan while in hospital for liver and kidney problems (which are now fully resolved), during which they found a mass in his right lung which is eroding into his vertebrae. Based on this CT we were told by a lung cancer specialist at the hospital that he has lung cancer. He told us that Dad would need a PET scan and a CT guided lung biopsy, and that this would be done within a couple of weeks. 

 

It’s been two weeks now and they’ve decided not to do a PET scan until the biopsy results indicate we need one and we don’t even have an appointment for the biopsy yet. We’ve called all the numbers we can but all anyone is saying is that it will be ‘soon’. 

 

I was just wondering what kind of wait times other people had to go through between being told they have cancer and having a biopsy to be able to find out it’s type and stage, is this normal?

 

I’m so scared for my Da and feel like they’re just wasting time and not taking it seriously enough, how can they tell someone they have lung cancer and then just send us home and leave us in limbo with a bunch of ‘soons’ like that’s okay?

 

I feel like I’m going crazy waiting.

  • I’m scared to say anything but it’s confusing getting told a person has cancer before a biopsy, I’m still waiting to be diagnosed, I have a huge tomour in my rectum, all the symptoms of cancer, but waiting now for results of my second biopsy a couple days ago and I got a PET scan on Dec 5th, my doctor did say if it is cancer it’s probably be stage 4, judging from the MRI, he also said there’s something smaller showing up in my lung, but it’s probably from smoking he said, oh I hope they didn’t jump the gun good luck  

  • Thank you for replying. I’m sorry to hear that you’re in a similar situation. You’re right it is so confusing being told and then having to wait, we don’t know how to feel as we don’t know what our reality is. The doctor who spoke to us told us that waiting a few weeks for a diagnosis won’t make a difference, but Dad’s symptoms have come on so quickly since then that I can’t help but feel they’re wasting our time. If you don’t mind my asking, how long did you have to wait for your first biopsy?

  • Hi there, My husband was diagnosed with lung cancer this year so will put the dates down for you to maybe help with your waiting times.

    CT scan 7th March, Bronchoscopy (with biopsy) 22nd March, Advised Lung Cancer 16th April. PET scan 24th April. Operation to remove 1 lobe on 8th June. 10 Lymph Nodes taken during operation and cancer found in 1.

    Chemotherapy advised as a precaution and that was started on 11th September.  Unfortunately after 2 rounds of chemotherapy and both ended in A & E (second time sepsis) chemo has now been stopped.

    hope this helps and good luck on your journey.