Hi, I was diagnosed with vulver cancer, December 2019, I had my 1st op at the start of December and 2nd op January 2020. I have had a part of the vulver cut away and the cliterous shaved, he left a small amount for sexual purposes. I saw my consultant 6 weeks later and he gave me the good news I was cancer free, but I have never stopped itching, which has spread so much up to my anus and down my legs and the worst is on the pubic bone. I was given strong steroid cream to use over a month but found it was too strong. I went to see 2 different doctors who were rude and didn’t want to really help me or even look at the area. Eventually one gave me a lower steroid cream which has helped but not got rid of the ulcers or the itchiness altogether. 8 months have gone by before being able to see my consultant, he was concerned and said that because of the steroid cream it’s done some damage and I now have eczema!!. He wanted to see me before Christmas but it never happened. I am go crazy with the itching, not sleeping, I’ve had a bit of bleeding from both ends, I find I can’t walk far as just too sore. I spend a lot of days in a nightdress as I find this help, but my health has deteriorated. I suffered for 18 months before seeing a consultant with what doctors were saying was thrush but none of the creams or tablets worked and not was I actually seen by a doctor to probably diagnose, mainly as there were no chaperones. So exhausted and at my wits end with it all.
