Vulva Cancer and ......

Hi I have had severre itching (unbearable) in the labia majora for months and months which comes with excess discharge, sore vagina, spotting inbetween periods, and sore on my groin, vulva and anus which never goes away no matter what cream I use!  I have been reading onl,in and also really concerned now as the open sores I have on my vulva etc area's I also have on the back of my neck, i've had this sore on the back of my neck for years and years and never thought anything of it, although my husband is always telling me to get it sorted but again I tried creams etc from the docs and nothing helps! I saw a gyno a few weeks ago and have been referred for a biopsy and vaginal ultrasound as they also think I have cells that are on my cervis which may need to be burned/iced away which causing the discharge as they can see a lot during examination.  I am so worried about it all and especially since reading about it can orginate from head or neck........can anyone help as this is all new to me and can they be linked????

  • Hello sbar83, 

    Poor you it sounds like this itching is truly uncomfortable and I hope you won't have to wait too long for your biopsy and vaginal ultrasound. 

    I know it is really hard but try not to worry too much or anticipate what it might be. The best thing to do to avoid thinking too much about this is to keep busy and distracted if you can and avoid looking things up online. I can imagine it is hard for you to do this at the moment but it will help you feel a little less anxious. I think it would be worth though mentioning this sore on the back of your neck as well as the other sores you describe to your doctor and gynaecologist and checking whether it is of relevance.

    I hope you will also hear from others here who have been through all this before and that they will be along soon to share their story with you. 

    Keeping everything crossed for you that everything turns out fine.

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • hi there 

    also been doctors for severe itching same area was told I was fine twice still worry as itching is awful

    tried creams everything also worry like u as having already had head and neck cancer in case linked but doctor assures  me I’m fine 

    please keep us updated 

     

    good luck 

    pauline 

  • Do you think the open sores on my neck and vulva and anul  area could all be linked?? Can’t wait for Friday to be over I’ve done nothing but worry? 

  • Hi I’m really not sure as I had left vocal chord cancer treated and only this year thishas happened but doctors insist I’m ok and nothing to worry over i will be thinking of u Friday please let us all know as I’m still worried there is something wrong 

    Thankyou 

    pauline 

  • I will let you know, thank you. Hope your ok. I have been to the doctors for the past 6 months on and off over the itching etc and they kept treating me for everything and nothing worked so finally referred to gyno. Keep persistent it seems the only way these days......

  • Hi there 

    Thankyou will see how u get in and like u say will speak with my gp again as also had creams and nothing works so far 

    ty again 

    pauline 

  • So today I went to see the gyno at the hospital. She carried out cryosurgery on some abnormal cells around my cervix which was fine didn’t hurt one bit was just like a smear she also took a swob. Then the hell came - she carried out 2 x biopsy’s and stitches which took 5 local anaesthetic injections to numb the areas (inner labia and outer labia) the injections were horrendous and I have a high pain threshold (after giving birth twice with no drugs). This was worse than childbirth. Now waiting 3 weeks for the results. Just resting in bed, sore with my hubby and boys looking after me. 

  • hi there sbar83 

    first test sounds ok second sounds so painful bless u I just hope all will come back good for u fingers crossed 

    can u let us know anything as I think I should also go back to doctors 

    this itch is not giving up so I’m really concerned about it now as seems one area outer part and no cream working 

    good  luck with results 

    pauline 

  • Thank you just a waiting game now. I will keep you posted but I would def keep on at our docs, sometimes we know our bodies better.

  • Welcome and yes just waiting seems long 

    and u are right got it keep asking them to check as we do know wen things not normal 

    like last time ear pain on and off few years turned out vocal chord cancer no wonder I’m paranoid now