visual migraines/aura on chemo, has anyone else had this?

Hi All,

I am on Gem/Cis and should have had the second bit of my 3 rd cycle today but held off as WCC low.

Since I started this treatment I have been having episodic visual migraines zig zags etc.

It doesnt always happen at the same time in the treatment cycle  and sometimes I can have 2-3 in a row which is scary.
this is something that I rarely had  over the years but now seems to be not infrequent.

The chemo doctor said all ones previous sy,ptoms of any type can come back during chemo but I wondered if others had this problem too.

TIA

  • As I noticed this post didn't receive any replies yet I thought I'd come by to say hello, GypsyCaravan.

    I'm sorry to hear that you're experiencing some vision troubles after starting your treatment. Perhaps it may be a good idea to ask your doctor the next chance you get if there is something they can do or prescribe to help with these symptoms?

    Hopefully, others who had a similar experience will come along shortly to give advice but in the meantime, if you feel that speaking with one of our nurses may help, feel free to give them a ring on this phone number 0808 800 4040, Monday - Friday between 9 a.m. - 5 p.m.

    Best wishes,

    Renata, Cancer Chat Moderator

  • Hi 

    I am 10 rounds in of FOLFIRI 5FU and Ertibux.

    I have had visual disturbances on 4 rounds...each last around 15 minutes.I would describe the effect as running water in front of one eye or sometimes a rainbow type aura .Usually on day 4 or 5 after chemo.I have not experienced this in both eyes at the same time. 

    I hope things improve for you as it is an unnerving experience.

  • Hi, I know this is an old post and the original poster is probably well out of treatment by now, but I thought it might be useful for anyone googling this topic. I don't have any answers to add but I too have been experiencing this. Previous to chemoshterapy I had the very occasional visual migraine aura without headache, maybe one or two a year, if that. Once I started on chemo these began to increase till I was getting two or three a week. Usually, but not always, around a procedure - it could be before, during or after an infusion or blood test, or sometimes not seemingly related to anything. They did improve when I stopped IV chemo, but I am now taking oral chemo and they are increasing again. My blood pressure is good, if anything on the low side. I have mentioned them to the chemo nurses and they've made a note of them but never suggeste what is causing them or any remedy. I am goingt to mention it to my oncologist next time I see him, I think as although it's not a serious side effect, it's quite annoying and slightly worrying. And it's almost certainly something to do with the treatment - even if it's just related to anxiety around the treatment.

  • Again, this may be an old post, but this might be useful to someone else.  I had an aura migraine every day of the chemo, which rather added insult to injury!  I did not have a headache either during or after, just the visual disturbance.  I wondered if it might be the steroids rather than the chemo itself, as even the steroid sprays you have for sinusitis give me migraines.  Have had them pretty well all my life, but not frequently enough to bother the doctor.