Hi i'm just wondering if anyone can give me advice or support, i have just recently been diagnosed with Vulva imprethilia neoplasia stage 1. I have been under the gynecologist for the past 8 months with small crack/sores on the vulva area(labia minora) i was first diagnosed with linchen planus by the gynecologist which i found hard to belive as i did not have the classical symptoms of linchen planus. They gave me numerous steroids and moisturisers to use but the lesions were not responding to the treatment. I got 4 different second opinion from other gynecologist aswell as dermatologist and all of them were saying it is eczema/linchen planus but non of them were willing to do a biopsy. I stressed to all the professionals that i am concerned it is either cancer or VIN but all of them were reassuring me that it was not and that i am getting ocd about my vulva area. I eventually went back to my gynecologist and insisted for a biopsy which she was reluctant to do but i refused to take a No for an answer this time, so eventually she agreed to do the biopsy. Last week i received a letter to state that my biopsy indicated VIN 1( very mild precancerous cell changes but no cancer detected in my biopsy sample). I new i was right.
My smear was normal with no hpv detected. My biopsy did not detect hpv neither.
I am absolutely devastated with this diagnosis and don't know what the future holds for me.
My gynecologist team said they are not concerned and that my cells can go back to normal. I'm more concerned about the lesion not healing and do not want the VIN to progress.
Is there any treatment for Vin 1 as my gynecologist said we only treat VIN 3. So i did my research and noticed there are creams they can prescribe and mentioned this to my gynecologist team and they agreed to prescribe me this cream, but I'm scared if the cream does not clear the lesion.
Has anyone else been in similar situation as me as i would greatly appreciate any advice and support.
I have googled and scared my self to death about the operations rgey do that can change your vulva anatomy. I am only 37 years old.