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Very scared waiting for a biopsy

22 Jul 2020 12:22

Hi everyone, 

 

I found a lump in my right breast which made me think "oh what's that!!!". I panicked, called the GP and she said it's probably something benign, likely a cyst. She said she can't confirm because she doesn't have ultrasound so I will be sent to the breast clinic for further investigation. I went today and they found the lump, said it could be a cyst so did an ultrasound. I could tell on the ultrasound it wasn't a cyst, which they confirmed that there is a mass that they need to biopsy. They also wanted to be thorough and do a mammogram first. This point I had a panic attack because why were they doing a mammogram unless it was suspect. Had the biopsy which was fine. The doctor said we don't know what the mass is, it could be benign or it could be cancer. He said if I knew it was cancer I'd tell you right now. From the images it looks like 1 lump. So I panicked more. He said, I'll see you in a week to discuss the findings. I said should I bring someone? He said yes. He said don't worry about it until you know what you're dealing with. 
 

The experience really shook me and now I have an anxious week wait to see what it is. I can't help but worry. I'm 34 with two young kids. I'm so terrified.

 

I was looking for reassurance from them but I got none. It was serious. I'm finding it hard to concentrate, I haven't eaten much at all, I'm supposed to be working but can't focus. 
 

How do you cope waiting for your results? Especially when they won't give anything away? 

Very scared waiting for a biopsy

24 Jul 2020 11:46 in response to Chodge

Hello Chodge, 

I just wanted to welcome you to our forum. I hope you won't have to wait too long for your biopsy results. I can imagine it must be a very stressful time for you while waiting for these important results. 

I know it is really hard but try not to worry too much or anticipate what it might be. The best thing to do to avoid thinking too much about this is to keep busy and distracted if you can and avoid looking things up online. I can imagine it is hard for you to do this at the moment but it will help you feel a little less anxious. 

I hope you will also hear from others here who have been through all this before and that they will be along soon to share their story with you. 

Keeping everything crossed for you that everything turns out fine. 

Best wishes, 

Lucie, Cancer Chat Moderator

Very scared waiting for a biopsy

24 Jul 2020 18:12 in response to Chodge

 

Hi Chodge,

I'm so sorry to hear that there is a possibility that this could be cancer. Very few of us get told anything at the first appointment, as the results of the tests that you have had will be the deciding factor. As someone who has had 2 bouts of breast cancer in the past 11years, I know just how worrying this week's wait can be. I agree with all of Lucie's advice.

Unfortunately, this is an area of medicine where doctors have to be brutally honest about their findings, so cannot always offer you the reassurance you crave. On both occasions my consultants told me that they were pretty sure that I had cancer and, unfortunately, they were right.

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Very scared waiting for a biopsy

24 Jul 2020 18:28 in response to Jolamine

I'm in the same situation. Went to check in a lump today thinking I would be sent away for wasting their time. Instead they took biopsies and the consultant told me she is sure there is something going on in my breast. When I asked her if it could be a cyst she basically said no it's not no, it's something. 
 

I'm emotionally in bits. I have 8 people staying with us in Devon over the next 2 weeks and I don't think I can look after myself let alone manage keeping this from my daughters. My husband is due to be starting a 3 month job abroad in 2 weeks and I don't know if I'll have the results back. 
 

and it could possibly still be nothing to worry about? Or not as the consultant was do negative. My husband says they have to tell you the worst case scenario but she didn't offer much hope. 
 

can they see on the scans that it's probably bad news? 

Very scared waiting for a biopsy

31 Jul 2020 13:07 in response to Renpen

Hi everyone,

 

Thank you for the support. I thought I'd update you on my outcome. Waiting and not knowing the outcome of my biopsy has got to be one of the worst weeks of my life, I'm sorry if you are going through this yourself. The not knowing is awful. I hope your results are good, fingers crossed for all those waiting. 
 

I had an indeterminate 30mm solid lesion in my right breast, the surgeon wasn't sure what is was. It did not have all the benign features and showed no malignant features so only the biopsy could say for definite. Fortunately for me, it was a fibroedanoma which couldn't be shown to be definitely benign until the biopsy.

 

I went on holiday to my parents house to distract myself and was also prescribed a short course of diazepam from the GP which helped tremendously with short term anxiety. I thought I'd mention it because I didn't know that was an available option for coping with waiting. 

 

Renpen, I truly hope you get the best outcome. My consultant was quite negative too, not giving much away. What does indeterminate mean even?! They err on the side of caution. Fingers crossed for you 

Very scared waiting for a biopsy

31 Jul 2020 17:44 in response to Chodge

Thank you so much for the update. That is so brilliant to hear and gives me hope 

 

I had a really good chat with my GP on Monday. He has reassured me that this is unlikely to be spread to my lungs which I was really worried about as I have a nervous cough. 
 

I have been prescribed beta blockers but I haven't taken them yet. I have decided that the longer I am in blissful ignorance the better! 
 

im so pleased to hear a happy outcome. I really hope mine is similar or at least not too serious. I will let you know. 
 

I hope whatever treatment you have to have is minimal and that this is the last time you have to access this forum in fear!

 

x

Very scared waiting for a biopsy

1 Aug 2020 15:17 in response to Renpen

Two years ago I found a lump in my right breast, I saw Dr as soon as possible, she said then that she didn't think it was a cyst so the hospital visits and tests started. I don't know why but I didn't panic, I tried to concentrate on the miracles of modern medicine and alsofelt I needed to be positive for my family. I had 6 chemo doses, three weeks apart. The first week wasn't nice, the second was an improvement and I was pretty good by the third, all ready for the next session. I had a lumpectomy then and I can honestly say that was a piece of cake. The 3 lymph nodes taken as well were clear. I didn't need the pain killers  , my scars are hardly visible now. The longest lasting effect was the dye they put in, it was many months before my breast lost its greenish tinge. 15 quick and easy radiotherapy sessions, herceptin jabs that they came to house to administer and now just daily hormone 'blockers' tablets. 
I'm not bigging  myself up as a super hero but apart from the chemo effects none of the treatments were too awful. The real heroes are the medical staff who will look after you and yes, make you better. I truly hope you have the best results but if not, try and focus on the positive and don't let fear and depression slow your recovery xx

Very scared waiting for a biopsy

1 Aug 2020 19:53 in response to Mama_Bear

Wow Mama Bear. Thank you. 
that is inspirational. 
I'm mainly feeling pretty strong and fierce about getting into treatment 

 

it's just the waiting the secrets and not being able to plan that is getting to me. 
 

I've been working right through lockdown and I missed a big holiday in July that was cancelled due to Corona. When that happened I booked a cheap week away at the end of August which I suspect I will have to cancel 

 

im just dreading telling my girls and my mum what is going on. I'm so hopeful that I can see the consultant and they'll tell me to go away with no treatment. If I have cancer there will be loads that I need to organise and rearrange and I can't plan for any of it til I know what's going on. 
 

I've decided that I'm going to call on Monday and at least try and find out when the follow up appointment might be, so that I can plan for getting to the hospital etc. I need to grab some control of this situation now. 
 

so grateful for the support in this forum x 

Very scared waiting for a biopsy

1 Aug 2020 21:48 in response to Chodge

 

Hi Chodge,

Thank you for updating us and, I'm delighted to hear that it was good news for you. Most of us find the waiting for results is one of the worse stages of the cancer journey.

Kind regards,

Jolamine xx

Very scared waiting for a biopsy

1 Aug 2020 22:01 in response to Renpen

 

Hi Renpen,

Did they tell you when you are likely to get your results? The usually come through in 1-2 weeks. It is always a worry when you have to break the news to family, but I'm sure that if it comes to this, they will all be very supportive.

Thinking of you and hoping that things pan out better than you're expecting. Remember that we are always here for you.

Kind regards,

Jolamine xx

 

Very scared waiting for a biopsy

2 Aug 2020 10:06 in response to Jolamine

Thanks Jolamine

yes they said 1-2 weeks. So I'm 9 days in so far. Hopefully I can get a date for the appointment soon as it's hard to drop everything and get to the hospital but obviously this takes precedence over everything else. 

I'll feel better when I've got a plan and I know what's going on   

 

Very scared waiting for a biopsy

7 Aug 2020 09:33 in response to Renpen

So I went to see them yesterday. 
I am reeling a bit because I genuinely didn't think that I could possibly get it. I've just turned 50 but I'm fit, I run half marathons. My weight is good, my diet is good. I don't smoke. 
 

but I have HER2 invasive breast cancer. There are 2 lumps in my breast but hopefully it hasn't spread. I'm waiting for an appointment for a sentinel biopsy and an MRI because I have dense breasts so they can't see it very well. 
 

they say I need 6 months of chemo, followed by a mascetomy, probably followed by radiation. But it is treatable. 
 

im not sure about the consultant. She is really harsh. I asked her if it can be cured and she said 'it's not for me to say, I'm the surgeon' but when I google I found a 99% recovery rate. 
 

she also says I will have to shield throughout chemo and she recommends that my husband doesn't work and that my daughter doesn't go to school. She has her GCSEs this year. Or she said we can live apart! 
 

I think I need to get some more advice from the oncologist as this is too much to handle. 

Very scared waiting for a biopsy

7 Aug 2020 11:21 in response to Renpen

Much better news. I spoke with the oncology nurse today. She says they are not advising shielding just generally being aware/hand washing etc

 

she has also booked my sentinel surgery for Tuesday with pre op today and MRI next Friday. 
 

I feel so much better now it's starting to happen

Very scared waiting for a biopsy

7 Aug 2020 14:58 in response to Renpen

 

HI Renpen,

I am so glad to hear that things have started to move for you at last. I hope that all goes well for you on Friday. We always feel better once we know our path ahead.

It's good to hear that you don't need to shield after all.

Please keep in touch.

Kind regards,

Jolamine xx

Very scared waiting for a biopsy

7 Aug 2020 15:00 in response to Renpen

Renpen, sorry to hear your diagnosis but great to hear that it can be sorted. It's good things are starting soon. The surgeon sounds a bit unsympathetic but it's great you felt better after talking to oncology. I wish you all the best in your treatment! You're strong, you're fit, this is treatable and you will get through it xxx