Hi Meadowsweet,

I'm so sorry to hear your diagnosis but I can tell you we're in much the same place on our journey as I too was diagnosed with TNBC last Friday.  That's not very helpful I know :)

Had my bone scan on Tuesday and CT will be on Monday.  I'm a bit upset that the results are to be given by the nurse and I won't get to discuss treatment with the consultant until after chemo.  It's in the lymph nodes, my arms are bad and there's something in my back.  I've got clotting issues and already questioning getting chemo at all. I want the scan results to help organise my thinking. I'm 47, no pain at mo, reasonably fit and happy out.

Can you give your cancer nurse a call and talk it through?  I can't see changes (can feel change after biopsy and clips) and imagine if I could I'd be scared too. Are you well in yourself apart from this? Hopefully your results are good and they'll get you started on chemo soon x All the best Meadowsweet.

Hi 2me, Thankyou for your reply. 

I just found it shocking to see how my breast is evolving. I suppose it is just that it is a visible change rather than one I can't see if you know what I mean. I'm keeping myself busy so that I don't fixate on it. 

I have my CT Sunday so if there is anything more untoward I am sure they will spot it. As for chemo, I am relieved to be starting it soon (don't have a date yet) as at least I will feel like it is being treated rather than just growing unchecked, plus if it has spread hopefully it will be treating that too. I may be wrong in my thinking, but it is how I am settling it in my head. 
my next appointment with the breast surgeon is only in July so I'm presuming chemo til then. 
 

as much as it is awful that we are both n this situation,I certainly take comfort knowing that there are others out there going through similar who truly understand.

take care and don't hesitate to get in touch

x

 

Hi Meadowsweet,

How's the journey going?  Did you get some peace of mind?  I really hope your results are good x

Hi 2me

i haven't had any CT results yet, but am seeing my oncologist next Tuesday so hopefully he will let me know. I am keen to just start chemo now and get going! As for peace of mind, mostly I have found it in that I am ready to accept whatever is happening and just relax into it. I'm leaving myself in their hands.

x

That's great Meadowsweet!  I had a pulmonary embolism last year and been on blood thinners since.  They missed some things and it was only when I found the lump and they diagnosed,  that the rest added up. 

I've got pain now which I thought was clotting issues.  Of course clotting issues are part and parcel of the cancer so what I thought was clot pain for the last near 12 months is cancer.  Don't worry, you'll be well monitored :)

They're sending me on for an MRI, evidently wanting something different to the CT results. So... I'm now feeling much better about the chemo knowing they'll be fully on the clotting issues. 

They've given me codeine, but I don't need it yet.  The sensations are odd though, so I thought of you with your visible worries.

Just read some fascinating papers about social isolation, coercive control and TNBC.  I've had my share of those things, although I'm confident those days are long, long behind me.  I remember the stress feeling like a physical pain very clearly. Way worse than the pain I have now from the cancer.

We're on the journey for sure now Meadowsweet :)xx