My mum suffers with something called CIDP google it. She has had tablets but they had no effect. She now has immuglobulin infusions every 3 weeks and gets a good 10 days relief each cycle... ask if you can try it. Good luck 

Hi Rob,

Have you been back to your oncologist or GP for advice? I was put on steroids temporarily which helped, but you'd need a prescription for those. 

It won't help much just now but many people find the symptoms ease with time. 

Good luck

Dave

That response hardly inspires confidence! I mean imagine if you took your car to the garage with a knocking sound and the mechanic gave that advice? 

Hi my names Dave,Ive suffered with this disorder for nearly 2years now and are at my wits end with the pain,I've been on all the main pain and drugs that you can get including. Gabapentin,lyrica morphine patches all types of creams and still I'm in a lot of pain. I'd welcome any advice how to be rid of it or even just to be able to go for a walk would be great 

I know . I googled the treatment mad4it mentioned earlier it's immuglobulin infusion the cost is $25.000 that's were I stopped reading with that one .

Hi Dave good to talk to you and tnks for replying. I thought there was only me with this condition as most people I ask who are recovering or have recovered say yea I get pins n needles I honestly would luv to be able to call them that. The pain is bad my toes feel like there try in to cramp spasm or sumat walk-in is so sensations like walk-in on broken glass . I'm same as you pal not took mi dog out for ages . Two years I finished chemo n like u tried all meds don't know what do at all . 

Yes that's how I try to tell people it's like all your toes are on top of each other and very painful we obviously have a severe bought of it. I haven't had alcohol for 2 and a Half years hoping that it would improve but it's got worse,to the point of unbearable at times. Know amount of medication works for me.im always at the doctor but don't know what else he can do. Not heard of surgery but I'd be more than happy to try anything,it's taken my life away just about manage to get round supermarket hanging on to a trolley then home,as I live alone it's become very difficult. Keep in touch my friend. 

We should be twins you were energetic builder and always manual work ,I'm ex Army and always keeping in shape now not a good sight. Ps. People that say you should be glad to be alive haven't experienced pain like you have and it's easy if your fit,but when your at your worst it's very hard to think of yourself as lucky. Take care my friend.