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Traumatic aborted colonoscopy - now long wait for CT scan.

22 Nov 2017 13:55

Hi there

I was sent for an urgent colonoscopy as my GP was worried I might have bowel cancer. I took my moviprep Monday and Tuesday morning and then went to Hospital. I was not given an appointment time, only an arrival time. I was taken to a small room at 2.20pm and fitted with a canula, which was quite painful. I was then left in that room by myself until 4.00pm. I was getting increasingly anxious from the waiting and I wasn't allowed to go to reception to see my partner, and he wasnt allowed in to see me. At 4.00pm a nurse came to tell me I was next, and I was taken to the exam room at 4.30pm. Since I was very anxious I asked for the maximum sedation and they gave me 5mg mizadolam and 100ug of Fentanyl. I felt a very slight drunk sensation, and then it passed. I was completely lucid, and recall the whole horrific ordeal. The pain was indescribable. I was sobbing and pleading for more painkillers. They decided to stop, which made me even more upset because I didnt want them to abandon the procedure, just give me a GA or more painkillers! The doctor said he saw the left side of my colon and that it was totally normal. I was allowed to leave after 10 minutes, and at no point did I feel woozy, sleepy or any effects that I had been told to expect from the sedation. They have now told me I need to wait 3 weeks to hear back about arranging a CT scan to view the side of my colon they couldn't reach. Obviously, I am really upset and quite angry - a) because the painkillers didn't work b) because the procedure wasn't completed and c) because I now have an anxious wait for the CT scan, if I even get it.

Has anyone else had this experience? Everyone I have spoken to said they didnt feel any pain, only discomfort. I'm now terrified of ever having the procedure again. Why didn't the painkillers have any effect on me? Can I ask for it again under general anaesthetic? What happens if they refuse the CT scan or I have to wait months for an appointment? Should I make a complaint to the hospital? I'm really unsure what to do.

Traumatic aborted colonoscopy - now long wait for CT scan.

22 Nov 2017 14:33 in response to Elly123

I didn’t have pain with a colonoscopy, a lot of discomfort but I did have it with an endoscopy, had maximum amount of sedation and it still hurt like hell. Totally lucid during the whole process, felt the scope go down, actually had to swallow the damn thing, no throat spray. Had another endoscopy last year, totally different, absolutely no problem.

 

I’ve had various tests and biopsies over the last few years and the effectiveness of the anaesthetics seems to be variable. 

 

Traumatic aborted colonoscopy - now long wait for CT scan.

22 Nov 2017 18:37 in response to rileyroo

Hi Ellie 

my thoughts are with you my partner had one a few years ago with 2 lots of sedation and he said he still felt something his was ok nothing bad 

I've got one on Monday and I'm dreading it bigtime  I'm so nervous the now getting in a state 

how did u find moviprep we u going to toilet constantly or not to much how was the taste  

my thoughts are with you I hope u get scan sooner 

 

Traumatic aborted colonoscopy - now long wait for CT scan.

22 Nov 2017 18:43 in response to Elly123

I have just recently had a colonoscopy. I was offered gas and air or sedation. I chose the gas and air as its something I was in control .It  was uncomfortable because of swelling but the gas and air helped a lot.

 

Traumatic aborted colonoscopy - now long wait for CT scan.

23 Nov 2017 16:45 in response to samdougie
The moviprep tasted like salty lemon. I didn't hate it.You will need to go a lot and you will get sore. Keep some baby wipes handy and some sudocrem. Its not that bad, you don't feel ill, its just a real clean out! Try not to be too anxious before the exam - it may be the reason the sedation and painkillers didn't work for me. I was already in a state after they hurt me trying to find a vein for the cannula. Good luck.

Traumatic aborted colonoscopy - now long wait for CT scan.

23 Nov 2017 16:53 in response to Elly123

Thanks was it horrible taste or not to bad I'm getting in a state 

have baby wipes and cream ready I have a pile so I will be bigger time I finish I've not been eating much 

we're u ok after the colonoscopy or were u sore I hope u get a answer soon 

take care 

Traumatic aborted colonoscopy - now long wait for CT scan.

23 Nov 2017 17:32 in response to Elly123

So sorry to read about your horrendous experience.

I'm not surprised that you felt stressed out and anxious, almost anyone would be after being kept waiting for so long. I've had umpteen colonoscopies over the past 25 years and have never had to wait more than a couple of hours, normally I've been seen within 15 minutes of my appointment time and luckily have only experienced mild discomfort.

I'm no expert but I did once read that a small percentage of people don't receive the expected pain relief from fentanyl. You may be one of those unlucky people. On the other hand, being stressed out may have made you to be physically tense and caused the pain you experienced.

Clinicians are encouraged not to give GA because of the small risk of complications arising. There were some very high profile cases a few years ago where NHS patients having fairly routine tests or procedures unexpectedly died as a result of the GA, so this reluctance is understandable. 

You could write to the hospital describing the horrendous experience you have had, to help them learn lessons from this. It would definitely be worth contacting the CT unit ahead of your scan to warn them of your anxieties which are not uncommon. 

I hope you manage to get through all this OK - I'm sure dozens of us on here can empathise with what you are going through.

Best wishes

Dave

Traumatic aborted colonoscopy - now long wait for CT scan.

24 Nov 2017 10:54 in response to samdougie
Its wasn't a horrible taste, I managed to drink the whole litre in an hour. Just make sure you have water afterwards so you don't dehydrate. I'm not the best person to ask about the colonoscopy - they had to stop mine halfway through due to the pain. I had a little gas afterwards but otherwise ok. I was back at work the day after.

Traumatic aborted colonoscopy - now long wait for CT scan.

24 Nov 2017 11:02 in response to davek

Hi Dave

Thanks a lot for your reply. I think the trouble started with them struggling to find a vein for the cannula. I was getting pretty stressed by then and my blood pressure, which is normally low, was 137/90. It definitely doesn't help being left in a small, cold and pretty grubby box rom for over two hours on your own, with no way of communicaing with anyone - you can't use your phone or see anyone you have with you in reception. I have decided I will write to the hospital and maybe contact the CT unit. For the CT I won't need a sedative so at least I won't need a cannula again, I should feel fine.

Best Wishes

Elly

Traumatic aborted colonoscopy - now long wait for CT scan.

8 Feb 2018 07:38 in response to Elly123

I had an aborted colonoscopy yesterday, i am so disappointed. I didn’t feel anything from the sedative at all and I was given gas&air which I don’t think I was using properly. I has some cramping pain at times but when they got to the transverse colon the pain was continuous, I couldn’t access the g&a properly as I was laid on my stomach with my arms out sideways and the nurse holding the mouth piece. I have not had g&a before and wasn’t shown how to use prior to procedure only given instructions when I needed it. I felt that the situation became chaotic, medical staff seemed to be all speaking at once, I was in pain and the colonoscopy was quickly aborted. Now I’m awaiting a ct (bowel prep to look forward to again), wondering why it was painful when others say uncomfortable and why I didn’t feel any relaxatiofrom the meds. It would have helped if someone had talked to me after the procedure. There was a nurse in the exit lounge, where I sat alone to have tea and toast with my husband sitting in the adjoining room, she was chatting to her colleague and glancing over to see if I was finished. She then rushed through the exit paperwork and shoved it in my bag. I must say before this I did feel very well looked after. I am so disappointed by this experience and am dreading the thought of having this test ever again. I wouldn’t let my experience put anyone off though as most get through it without any problem. 

Traumatic aborted colonoscopy - now long wait for CT scan.

20 Mar 2018 16:06 in response to Elly123
Hello I know this post is from a while ago. Did you get your CT scan? I'm getting my CT Colonoscopy in 3 days after having a failed Colonoscopy due to the pain I had during it. They had to stop for me aswell. The sudation did nothing for me! Anyways I was just wondering what this CT scan will be like as ive heard the gas they inflate you with is the same and I think thats what hurt me before so I'm worried. Thanks Emma

Traumatic aborted colonoscopy - now long wait for CT scan.

18 May 2018 19:31 in response to Emma86
Hi I've just had a colonoscopy that was aborted. Had sedation but was in excruciating pain and had bad gas pain after. I would be interested to hear someone's experience of a ct colonography as this may be suggested as an alternative for me. Thanks

Traumatic aborted colonoscopy - now long wait for CT scan.

5 Aug 2018 22:01 in response to TLR

Well, after getting trapped in a hot broken down train for 2 hours, almost fainting, chucking up water, & turning up 1 hour late, and then waiting another 2.5hours, I finally started my SECOND colonoscopy. (The 1st one in a different hospital and endoscopist was aborted because i passed out with a vasovagel attack after  panicking i was going to explode !).

Started well with me positive and fairly relaxed even before the sedation. I was then allegedly given the sedative and Fentanyl through what later looked like a varicose vein on back of my hand. (Neither had ABSOLUTELY NO EFFECT on me i later realised). What followed i can only describe as increasing stabs of excruciating pain of which i never experienced before.  (Whoever says thatt colonsocopies are painless is a bigger liar than Nigel Farage!).After several of these, the endoscopist announced in a aggressive manner that he would NOT under any circumstances be continuing as 'this is a diagnostic service not a torture chamber!  In desperation i even offered to bite on something so i could the thing finished, but he said there was serous danger he could perforate my bowel & i could die as my colon was so narrow and twisty with me jumping around with the pain!  OMG! 

.......he then said he would be sending me for a CT scan & i should be thankfull as these COST A LOT MORE! 

I'm now even more serously worried (if thats possible?), that if the CT scan (if that is'nt aborted too?), that if it shows any growths or even small polyps which could turn nasty later, the they won't be able to remove them other than slicing out chunks of my bowels under a general anaethestic?! 

I also have diverticulitis too apparently, so could this could be responsible for my symptoms of looser stools & blood? (which had actually stopped before the 1st colonoscopy, although back again now)  They managed to access only 25% of my colon, so guess the cancer or malignant polyps could be hiding in the 75% dark side??  A parent had bowel cancer too.

OH... I have the whole thing recorded again including my shouts and groans of pain!!!  I can also remember everything and speak clearly throughout - also i was not tingly or light headed whatsover unlike the 1st colonoscopy. I think i had no painkiller or sedation - should i ask for a 3rd colonoscopy with the fentany given properly this time?  

Traumatic aborted colonoscopy - now long wait for CT scan.

5 Aug 2018 22:02 in response to Elly123

Well, after getting trapped in a hot broken down train for 2 hours, almost fainting, chucking up water, & turning up 1 hour late, and then waiting another 2.5hours, I finally started my SECOND colonoscopy. (The 1st one in a different hospital and endoscopist was aborted because i passed out with a vasovagel attack after  panicking i was going to explode !).

Started well with me positive and fairly relaxed even before the sedation. I was then allegedly given the sedative and Fentanyl through what later looked like a varicose vein on back of my hand. (Neither had ABSOLUTELY NO EFFECT on me i later realised). What followed i can only describe as increasing stabs of excruciating pain of which i never experienced before.  (Whoever says thatt colonsocopies are painless is a bigger liar than Nigel Farage!).After several of these, the endoscopist announced in a aggressive manner that he would NOT under any circumstances be continuing as 'this is a diagnostic service not a torture chamber!  In desperation i even offered to bite on something so i could the thing finished, but he said there was serous danger he could perforate my bowel & i could die as my colon was so narrow and twisty with me jumping around with the pain!  OMG! 

.......he then said he would be sending me for a CT scan & i should be thankfull as these COST A LOT MORE! 

I'm now even more serously worried (if thats possible?), that if the CT scan (if that is'nt aborted too?), that if it shows any growths or even small polyps which could turn nasty later, the they won't be able to remove them other than slicing out chunks of my bowels under a general anaethestic?! 

I also have diverticulitis too apparently, so could this could be responsible for my symptoms of looser stools & blood? (which had actually stopped before the 1st colonoscopy, although back again now)  They managed to access only 25% of my colon, so guess the cancer or malignant polyps could be hiding in the 75% dark side??  A parent had bowel cancer too.

OH... I have the whole thing recorded again including my shouts and groans of pain!!!  I can also remember everything and speak clearly throughout - also i was not tingly or light headed whatsover unlike the 1st colonoscopy. I think i had no painkiller or sedation - should i ask for a 3rd colonoscopy with the fentany given properly this time?  

Traumatic aborted colonoscopy - now long wait for CT scan.

5 Aug 2018 23:31 in response to Anonymous

Hi,

So sorry to hear about your second horrible experience. Most people don't have anything like that level of pain, my guess is that the diverticulitis has caused you to become sensitive and that added to your anxiety and twitchiness has created the extreme pain you experienced. I've had several colonoscopies over the past thirty years and the only time it was ever anything other than mildly unpleasant was when I had ulcers in my colon and the probe touched one of them. The pain then was extreme, so I can empathise with your experience.

The CT scan is a piece of cake in comparison - completely non-invasive with just a canula in your hand through which a dye is passed (assuming you have a CT with contrast). 

Good luck!

Dave