Totally losing my mind

Hi guys,

Where to start....I am 32 years old,  I had a couple of collapses in the middle of last year, cancer was the last thing on my mind as all the drs were concerned about my heart due to abnormalities found on ECGs, symptoms settled down and I continued with work ect. 

I work at my local hospital and on 1st of December at handover time on my ward I collapsed again and had a seizure, when I came round I was vomiting and couldn't breath through the pains in my chest. My wonderful colleagues rushed me downstairs to A&E where they checked me over and sent me home telling me to get my GP to refer to cardiology. Long story short, I spent most of December in and out of A&E with 'text book heart attacks' but all my ECGs were normal and bloods negative. The cardiologist finally relented and referred for an CT angiogram which I had on 06/01/21. At this point I was still convinced the problem laid with my heart.

The cardiologist called me the day after my angiogram and told me my heart was looking absolutely fine (phew!!) But then went on to say the scan shows I had osteoblastic lesions on my sternum and vertebrae and my lymph nodes are enlarged, she was making an urgent referral to oncology and the breast unit.

48hours later I was on another CT table having a full chest, abdomen and pelvis scan, since then I have heard nothing. I called the breast unit today for an update as I am driving myself insane overthinking and googling (I know, worst thing I could do, and would advise any of my patients against it)  anyway they've said the scan is still with radiology and they're waiting for the report and I should hear in due course.

I've tried talking to my ward manager about it but she's said she doesn't want to comment as she's not my clinician and doesn't want to give me wrong information (which I sort of understand) but she doesn't want me in work until we know exactly what 'this' is due to the working conditions and covid infection rate in our local hospital at the moment.

I just wondered if anyone has been through similar or if anyone can shed any light on osteoblastic lesions because as far as I can see they're linked to secondary cancer  and I am driving myself insane thinking and imaging the worst, I'm not sleeping, hardly eating and only interacting with people if I really have no other choice. I'm literally walking round like a zombie.

Thank you 

 

  • Hello Gemma88

    I'm sorry to hear about all that you've been through over the past few months and that the recent tests have revealed some areas of concern. It's understandable that you're feeling worried and I do hope that you don't have to wait too long to hear from the team about the most recent scans. 

    I'm going to suggest that you give our team of nurses a call. I'm sure they will be happy to try and give you some information and to offer you some support. They're available Monday to Friday from 9am to 5 pm on 0808 800 4040. 

    Keep in touch Gemma and let us know how you're getting on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Thank you for your reply,

    So, I've spoken to a breast surgeon this morning. Nothing of any concerns in regards to breast cancer but they have now found more osteoblastic lesions on my spine, sternum and ribs, along with what looks like cysts on my liver and overies and free fluid in my pelvis. 

    They're holding a multi disciplinary team meeting next week with the oncology team to find the best way forward and what team I need to be under.

    Things just seem to be going from bad to worse at the moment, I just wish someone could give me a diagnosis.

  • Hi Gemma

    I am sorry to hear that news. This period of uncertainty can be so very difficult. Hopefully the MDT next week will bring some answers and you'll know more about what you're facing. 

    If you want to talk things through at any point give our nurses a call. Do keep in touch and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • So a little update. The MTD went ahead yesterday morning, the most recent CT scan showed multiple osteoblastic metastasis on my sternum, spine, ribs and pelvis.

    I have now been referred on to CUP team and started on a cancer pathway while they investigate further and see if they can find a primary tumor. So no doubt more scans ect to see what they can find!

    Trying my hardest to stay positive and optimistic as I haven't formally received a diagnosis yet

  • Hi Gemma

    I'm glad to hear that you've been started on a pathway and that the CUP team will be taking you under their wing for the time being. Hopefully, the investigations will give them some answers. 

    Not knowing can be incredibly difficult but hopefully once you've met with the CUP team and you've talked about treatment options you may find that you feel better about things. 

    Keep positive, be kind to yourself and keep in touch to let us know how you get on. 

    Sending my best wishes, 
    Jenn
    Cancer Chat moderator