hi this is Hazel  you’ve already read my blog but here it is again 

www.radioactiveraz.wordpress.com

i am now 10 month post radiotherapy for tonsil cancer t2n2nm I  too had 35 sessions  of radiotherapy and 2 chemo. The mask is nit a scary procedure I can assure  yiu the thought is scarier than the actual event thenstaff know exactly what do do my word if advise I asked for eye holes to be cut into mask nit all hospitals will but worth asking as it does or did help me as I am a nosy little one. Once treatment starts you soon get into swing of it another word of advise talk to others in the waiting room you will be surprised how much you have in common we are now friends with 2 couples who did treatment with us we go our and ok us the patients may struggle  to eat but  it give you the carer someone who can relate to you. .

yes I had never felt as well just returned from 8 weeks cycling in Spain and by the  end if treatment thought would I ever feel well again. Well here I am sat in Spain been in my bike maybe nit as fast or as far but hey I am here and able to do it. Only a quick 2weeks but  this time last year I was inyour position mask made 10 july treatment statutes 16 July. Hang on in there 

h x 

Thank you Hazel.

We visited our dentist today who is going to do his extractions next week, so as were told he has to wait 2 weeks for everything to heal up I am thinking he will be starting in about 3 weeks.   Just feel we aren't in control of our lives and it is a constant round of travelling to appointments, phone calls etc etc.   The thing that most worries me is the RIG as I have read that it is easier to get back to normal eating without tube feeding, however the hospital dietician and nutritionist ( also our dentist, who is a friend) says they would be very surprised if he managed without, so he has reluctantly agreed, they said it will probably be put in during 2nd week of treatment.   We are trying to arrange a few days away before treatment starts but until we have some dates we can't, hopefully we will soon.   My husband is totally positive and adamant that he is going to get through this one way or another and more put out than anything that he has has to miss rugby at Cardiff in August.    

Hi no worries. Positive mental attitude is the way to be yes it’s fine to be angry about the rugby it’s the little things that get to you.  Treat to rig as a friend it’s there’s if u need it don’t worry about eatingvafter treatment finished it will come back to him. Remember I am a wimp and if u can do it anyone can 

keep in touch let me know how mask fitting goes I gave mine a name spoke to her every day told it that it was my first line of defence 

eventually brought her home n she lives in garage comes out in special occasions like our ruby wedding the other week as without her I wouldn’t have been here to celebrate. I did my blog as it was the only thing I could control one word of advise again eat eat n more eating between now n treatment I put 11 lb on n it put me in good stead. 

Only 5 ft tall but am back now to my normal 9 stone 

h x

Hi, 

I too have tonsil cancer with lymph node spread. Diagnosed in May. Have had PEG feeder fitted last week and also started chemo and radiotherapy last week too - week from hell. My world has been turned upside down and I know the treatment is going to be brutal and make me feel ill and I felt perfectly fine before . But all I'm keeping in my mind is that the consultant said there was a ' high probability of a CURE'.  I lie there when I'm being zapped chanting 'burn the ***'. 

My husband feels helpless as you do, he would do anything to take this away and he's angry that I'm going thru this again as I had breast cancer 7 years ago. 

But it is what it is and I'll get by taking one day at a time. 

Best of luck for the journey.  

Caroline x 

Hi Carolineuep you’ve just about got the  gist of everything. I am 10 month post radiotherapy formronsil cancer with 35 rad and 2 chemotherapy welcome to the club .yiuve beaten it invest you can do it again positive mental attitude and am sure you’ve got that .

i have a blog detailing my experience you may have seen it if not www. radioactiveraz .wordpress.com .any questions feels free to shout out your oncologist is right ut is emminently treatable  and curable just a rocky road to get there. I was T2N2NM0 h p v 16+ 

baby steps all the way will get you there

Hazel x

Hi there

Am sorry to hear of your diagnosis and can understand your angst.

I was diagnosed last June with tonsil cancer and am still in recovery phase at the momment.
I kept a blog from the get go and its helped so many others from here (and abroad) and you might find it benefitial to hear what potentially lies ahead. Also plenty of good advice and tips and broken into sections with timelines etc.
Its not an easy journey duw to the threatment and location of where it is but on the positive side it is one of the most curable and one with the highest rate of success.
I also started a thread here called "Radiotherpay for Throat Cancer" and its under Living with Cancer.
This has been really quite popular with over a 1000 posts and many contributions from many should you also want to read that and also please feel free to join in.

Please see link below to my personal blog and also please feel free to ask away any questions or let me know if I can help in anyway at all

radiotherapythroat.home.blog

regards

Ian

Hello Caroline 

Ditto to your post apart from my treatment starts in a couple of weeks 

Thanks