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Tongue Biopsy. Waiting on results

29 Jan 2019 22:37 in response to BengalKitty

Hi Kitty,

I had two tongue biopsies just over two weeks ago. I wonder if its where the biopsy is taken from or perhaps the doc thats doing the procedure. Mine were no problem at all. Having said that Im scheduled for another tomorrow on hard palate so no stitches it will be cauterised so dont know what this will be like painwise:-(

My results came back with the dreaded its cancer. They suspect its spread so further tests. I am waiting till they have all the meetings etc to be told the fuller picture. Like you I am not sure if this is the road for me.

I wish you all the best and hope you get a good result.xxx

Tongue Biopsy. Waiting on results

30 Jan 2019 19:13 in response to clara56

Hi clara  not sure why  Kittys and my own biospsy  caused the crazy pain  they caused must have something to do with the way  or area on tounge but although worst pain ever it is short lived although the swollowing  of tablets, food is still with me 2 years later after operation and radiotherapy I am so lucky that i have not to take any medication so dont worry to much clara its not gonna be easy but you will get through.. the cancer care is fantastic....people that treat you like their own family,,,they must see hear so much every day work long hours but listen to any worries you have...keep intouch I wish you all the best.demc xo

 

Tongue Biopsy. Waiting on results

31 Jan 2019 13:01 in response to demc

Hi Demc

Thank you for your kind words of encouragment Happy

Well I had my palate biopsy yesterday. The injections were quite quite painful one side of palate didnt numb up at all. The electro cautery was pretty painfull too,she had alot of goes at it to stop the bleeding. She said you have a great pain threshold! I thought to myself you wouldnt want to be on the recieving end yourself lol.

I had to wait there at hospital for 2.5 hrs for ct scan and was worried that the numbness would wear off by then,so I took an ibuprofen and was fine. I reported in early so they took me a bit earlier too.

She advised that hole in palate will take around 3 weeks to heal so back to soft diet. I was eating normal within a few days of previous tongue biopsies I even tackled eating american hard gums(my achiles heel) those sweets. The hospital staff are all lovely, though the surgeon is quite rough I told the girls yesterday,I think he thought I was under anaesthetic,they all laughed and said heavy handed men dont have the light touch of women lol.

Take care and keep well xx

Tongue Biopsy. Waiting on results

31 Jan 2019 17:08 in response to clara56

Hello clara great to hear you are a bit futher on you seem in good spirits too keep your chin up girl! keep in touch stay well..demc

Tongue Biopsy. Waiting on results

2 Feb 2019 17:17 in response to demc

Guys So sorry, didn't realise anyone had responded! I assumed I would get an email saying there was a reply. 

Thank you so much for the support ( not getting much from Hubby! ) 

Day 5 now and still clock-watching to see when I can take some more painkillers. The salt rinses help but the Difflam spray is useless. 

On the first night I managed to get some sleep with the aid of co-codamol but was awoken by a popping sensation in the area of the biopsy - pretty certain it was the stitch coming away but decided that there was no way I was returning to the hospital to have another one put in.

I'm self-employed so was back at work the next day and my colleagues were horrified by the huge purple bruise under the tongue which I assume was from the needle when they gave me the lignocaine. And the nasty swelling on the side of my tongue, much bigger and more painful than the original lesion. 

The young man carrying out the procedure was being guided by the nurse holding my tongue to one side - after 3 needles, he attempted the biopsy only to have me nearly jump out of the chair as I could still feel pain. The 4th injection completely numbed the area and he was then able to take a piece of tissue. I know trainees have to start somewhere but I couldn't help but think Why me, Lord!! 

Another friend who had a very painful tongue biopsy also had tissue taken from the side of the tongue so this must be the most sensitive area. 

It really helps to know you went through it too, demc, on the NHS website it says a punch biopsy doesn't need stitches ( it did) and that it is not very painful - humph! I was so incensed that I emailed them saying they should change their advice but I got a very bland response saying my comments would be passed on to the appropriate department. 

Even taking tablets was torture to begin with but I read somewhere that tipping your chin downwards as you swallow would help, and it did. 

Oh yes and I bought a mouthguard from eBay, a silicone one which you dip in hot water and mould to your teeth - the consultant told me to ask my dentist to make one to wear at night so the sore area didn't touch my teeth but I wanted to try it ASAP and couldn't get in to the dentist - waste of money, I can't sleep with a mouth full of plastic, it was horrible. 

Tongue Biopsy. Waiting on results

2 Feb 2019 17:30 in response to BengalKitty

And Clara So sorry the news is bad. My heart aches for you and I hope that they can fully eradicate the cancer. A very young friend of mine was given a diagnosis of cancer of the salivary gland, I read up on it and sat there with tears rolling down my cheeks - the treatment involves removal of the gland, jawbone and palate. I imagined her with facial scars ( she's 27) and it said patients may need speech therapy after they receive the new palate. But do you know what - the scars are hardly visible, she looks amazing, and her speech is almost as it used to be, only when she's tired do we notice that she slurs a little.

It really is incredible what surgeons can do today. Keep in touch and let us know how you get on xx

 

 

Tongue Biopsy. Waiting on results

2 Feb 2019 21:13 in response to BengalKitty

Hi Bengalkitty, 

I noticed you mentioned you may not be receiving email notifications so I just thought I'd quickly jump in to see if I could help.

I checked your profile and can see you are set up to receive them so if they're not in your inbox it may be worth checking your junk or spam folder. If you find your notifications in there I'd recommend marking us as a 'safe sender' so any future emails can then go straight to your inbox.

If this isn't the case then do get in touch with us about this just here.

Kind regards, 

Steph, Cancer Chat Moderator

Tongue Biopsy. Waiting on results

3 Feb 2019 16:51 in response to Moderator Steph

Thanks Steph, have clicked on the link. 

Tongue Biopsy. Waiting on results

4 Feb 2019 15:36 in response to BengalKitty

Hi Bengalkitty,

Thank you so much for your reply and kind words. I dont get email notification either I just pop into the threads Ive been on and have a look for any replies etc.

It sounds like your biopsy has been a horror one. My stitches started to break down by day 5 and both biopsies healed really well. Mind you Ive had a horrible 4 days with the latest palate biopsy it was so painful I thought it must be infected.But it has improved by yesterday I could eat sunday dinner albeit very slowly.I find if you take a painkiller 30min before eating it helps alot.

My late husband had parotid gland cancer so visiting maxfac clinics with him for 5yrs I seen and learned an awful lot so I kind-of know what Im looking at even before looking into that Dr Google with the scary stuff.

I know what you mean about junior docs Ive had one really good 2nd not so good:-)

Its another 10 days till I see consultant for test results and stageing etc. In the meantime I got a bowel cancer test kit in post and an appt for a mammogram. Happy days! I maybe glow in the dark soon lol.

One thing Im disapointed about is that I am aware of oral cancer having kept a close eye on my husbands mouth and neck and I only spotted this tumour because of a nasty throat infection as its in a tricky area. All the Drs that have seen it say the same thing. So if it has spread it mustve done very quickly. When the consultant took photos of it he blinded me with the flash he is also very rough pulling tongue out to its max like its elastic or something.

Take care and best wishes xx

 

Tongue Biopsy. Waiting on results

4 Feb 2019 17:07 in response to clara56

Dear clara...my heart goes out to you so sorry to hear you lost your husband to cancer..and now your having to deal with it all again...you sound like a strong women with a great sense of humour! Such a shame that your doctor has been so rough its not nice...funny you mention your bowel cancer kit  i sent mine off the other week had reply which was great news had great news from mamagram! so keep your chin up Mrs i know its not easy...  so keep yourself busy with lots of good company wer all here wishing you all our best wishes...xo

Tongue Biopsy. Waiting on results

4 Feb 2019 18:05 in response to demc

Hi Demc

Good to hear from you!

In your msg to Bengalkitty you said biopsy was worst pain,so you felt less pain after surgery?

My husband and I both had great sense of humour people used to say we were like best pals.

I am feeling just a wee bit guilty that I am managing food better than other poor souls on here. I have been craving for toast, so today I had some it wasnt easy but I did manage it Happy Daughter asked today if I wanted her to buy some american gums I had to admit to already having 3 bags of them waiting for me.

Take care and best wishes xx

Tongue Biopsy. Waiting on results

4 Feb 2019 19:18 in response to clara56

Hi clara56, the sugery was nothing compared to the pain of   biospy... was worst pain ever! not the cutting of right side of my tougne but when the pain killer that was injected by understudy wore off well i went crazy never ever will forget the pain id rather go through 24 hrs labour again just cant discribe the pain couldnt talk, eat, swollow, run about the house like a mad women!! also trying to swollow pain killers had to push tablets right down my throat  as i couldnt drink water didnt eat for  days but i guess it is different for every one  had op to remove more of tongue also had to remove nodes in my neck i got home 3 days later as i couldnt eat any thing in hospital my tongue was twice the size when tougne is cut it also affects how you swollow  i can eat now but it is only soft foods cant chew bread as well as used to either never mind american hard gums!! lol... cant speak as well as before cant shout either! husbant says it great!  but hey 2 years later im here no medication doing so well...the cancer hospital is a different world...so many people going through so so much more than i ever had to...dont you feel guilty about eating clara get it in you and enjoy every one of those gums...just say 1 for me one for dee! lol stay strong mrs! xo 

Tongue Biopsy. Waiting on results

4 Feb 2019 23:06 in response to demc

Oh Lord You two have really been through the mill! But have kept your sense of humour and I salute you both. 

I also did the bowel cancer test and it came back negative. But ( runs and hides) - I cancelled the mammogram. I know, I know. But I am not very well blessed in that department and when I got called for the first one, they could hardly find enough flesh to squeeze between the plates and it was very uncomfortable to say the least ( imagine a test for testicular cancer where they clamped the organs like that!! But we women are expected to grin and bear it.)  

So although as a health care professional myself I would always advise regular mammograms, I'm afraid I don't take my own advice and rely on self checks. Any lump which might develop would be very obvious in my small bosom.  I just know I'm going to get slated for saying that...

 

Tongue Biopsy. Waiting on results

5 Feb 2019 14:17 in response to BengalKitty

 Hi kitty hows things going for you? have been thinking about you ...how youve been getting through...so you wont go for your mammogram eh??? what are we calara myself and all the other ladies on here going to do about this...if i asked you on behalf of all us ladies to please go would you kitty...i know what you mean about the squeezing cause i dont have much either but i just told myself no it ant sore...it really isnt compared to what you have just been through kitty and i know when i got my last radiotherapy treatment i shut my front door and thought thats it never again no more...but you know what kitty life is so short so we all gotta do what the other one gotta do to stay alive be with our loved ones just that little bit longer...maybe get another appoinment made in few weeks time give yourself a break between all else that is going on...but please stay intouch cause wer all on the same boat here looking out trying to help each other...stay strong xo

 

Tongue Biopsy. Waiting on results

5 Feb 2019 21:06 in response to BengalKitty

Bengalkitty

 

I had this and my Tonsils out at the same time just 10 days ago, I can say that the pain is stomach churning I am coming through the worst now and just chewing again. I too thought I had a high pain threshold but the pain of this was like no other. 

 

I hope you get the results you want, I will be starting chemoradio therapy soon, just want it out the way now so I can get back to living and not worrying.

X