Tired.

Hello everybody, 

I am not sure what brought me to this forum, but I really don't know who to talk too anymore. 

I will not bore you with too much detail, but paint you a quick picture. I was a normal healthy young man enjoying gym and doing bodybuilding a year ago. I weighed 95kg, but in July of 2018 my life took a turn for the worst and my weight went down to 58kg. It all started out as a mild discomfort under my left clavicle on my chest wall. When I touched the area, I could clearly feel a small lump but thought nothing of it and ignored it. Over the following months I started experiencing the most debilitating symptoms. I have a sensation that I am drowning and find myself gasping for air day and night. I have repeatedly consulted with my GP since October 2018 who thinks it is all just in my head and she will not listen to me or refer me. I've changed GP twice, and just cannot get any help.

The lump has been progressively growing since last year, and a second lump has become visible next to the first. I am so worn out by the sensation of lacking air, that it has taken over my life and I have been unable to function in my job and have been off work for 7 months now. 

I have seen the orthopaedic team and they did a CT scan of my left clavicle bone above the lump as my clavicle bone is depressed. The CT scan did not show a problem with the bone.

The orthopaedics treated the lump as a simple inflammation of the cartilage, but I have used anti-inflammatory creams and drugs with no relief. When I told the orthopaedics that I have no improvement, they told me that they don't deal with soft tissue problems and discharged me back to my GP who referred me for physio therapy. The physiotherapist discharged me as he was reluctant to touch the lump due to the symptoms that exacerbates upon touching. I have exhausted all my resources to go private as I have been off work with no income for 7 months and I think I am going to die.

My symptoms are as follows: 


A severe sensation of drowning / air hunger 
Heart Arrhythmia that worsens depending on my position
Pain and discomfort around the lump that's varies in severity 
Hoarseness
When the lump gets pushed, it sends a jolt into the left side of my throat and tongue. 
A sticky wet noise at the lump when moving my shoulder, but only on the left side 
A trembling vibrating throbbing beneath the lump when I lie down
Continuous metal taste in my mouth
Chronic malaise 

 
I have been telling my GP that a lump out of nowhere cannot be normal and have asked for a biopsy or an MRI of the lump but all my requests have been denied. 

I am contemplating assisted suicide because I cannot get help and unfortunately I do not have any parents to help me either, I am being drugged by my doctors with Valium and Citalopram that I cannot even think straight anymore, and have no more funds to go private.. I think I've given up. 

Thank you for listening. 

Karl

 

  • Hello Karl and a warm welcome to our forum, 

    Poor you it sounds like you are going through so much at the moment and your symptoms are clearly so debilitating you are very brave and I can understand why you are feeling so low and that you are getting nowhere. I am sure many on our forum will join me in saying please don't give up. I am sure you will manage to find the help you need. If over the weekend for example you feel really breathless and need to talk to someone, don't hesitate to ring 111 and see if you can see an out of hours doctor who will give you another opinion on the situation. If things are really bad for you and you feel it is an emergency, you could also ring 999 or go to your nearest A and E and mention that you are struggling to breathe and the severe sensation of drowning and air hunger you describe. You can find out more about getting another opinion on this page - I know you have already talked to several doctors but hopefully this page will have some good tips for you to help you get seen by someone soon. 

    I am really sorry but I have had to remove the photos you uploaded here as per our tems and conditions, we do not allow photos of a medical nature to be posted for the purposes of diagnosis. Unfortunately no one here will have the knowledge or be in a position to tell you what it might be so you've totally done the right thing in getting examined by medical professionals. I really hope you can get to the bottom of this soon Karl and do persevere in getting the doctors to take your concerns seriously or to refer you to a specialist. Do mention to the doctor how low this is making you feel and how desperate you are to get some answers and further tests. 

    If you feel really down about all this at any point and it is having a severe effect on your mental wellbeing, don't hesitate to give a call to Samaritans  they are there to listen to you 365 days a year and 24 hours a day. You can find their contact details on this page

    We're all here for you if you need to talk and we really hope you get the reassurance you need soon. 

    Best wishes, 

    Lucie, Cancer Chat Moderator