Together we will beat cancer



6 Aug 2019 19:24


i am 7 months in recovery from tonsil cancer, my last radio and chemo was December .  The last week I have been suffering from tinitus again and it is worse than ever.  Does anyone have any hints or tips?   Also I have had a pain in my jaw and cheek bone since having a hot dog and a drink ar the weekend, barbie.

Just wondering if anyone has had the same sort of symptoms.





8 Aug 2019 16:00 in response to mabel123

I'm sorry you're having difficulty with tinnitus again Tony, it must be very difficult.

Two of lovely regulars @RadioactiveRaz ‍ and @Anchor1707 ‍ are about a year or so in to their recovery from tonsil cancer so hopefully they'll pop by when they can to offer some support and advice. Our cancer nurses are also available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m if you'd like to chat with them about this as well but if it's easier you're more than welcome to make a new post about this in their section of the forum

I do hope this gets more manageable soon Tony but if not, do be sure to pop in to your GP to see if they can help.

Kind regards, 

Steph, Cancer Chat Moderator


8 Aug 2019 17:39 in response to mabel123

Hi Tony

I'm Acnhor1707 (Ian )mentioned by moderator and sorry to hear about your symptoms

Not versed on tinitus but I still have issues with my gums left side tongue and my treatment stopped last November, Had xrays done at dental hospital and was told I had slow healing sockets and some skin loose from radiotherpy. Ive got a few appts coming up to get dental work required.

I should say I had all my back teeth out pre radiotherapy so I'm not sure if your in same boat and had teeth extraction or managed to avoid.
In any case I would suggest going to your dentist than as they would be much better at picking anything up re mouth symptoms and maybe GP re tinitus
Sounds like area still quite sensitive and If your like me it can take some time to heal propely according to consultant and dentist I'm afraid. 

Try dentist first to see what they say.

Ive also put a link to my blog that I kept from the getgo and that logs timelines thoughout treatment etc/links to others.

Let me know if I can help further



8 Aug 2019 18:43 in response to mabel123

Hi Tony

can onky echo what Ian says there are certain foods that even a year nearly in still can’t eat ,have yiu dry mouth as well if so that doesn’t help with eating I certainly can’t eat anything bpcooked in a bar I eat the overcooked bits just are a no no also chicken and rice aren’t comfy to eat so I leave well alone . Re the tinnitus you should be seeing ent every 6 weeks please mention to them or even ring hospital appointments to see if you can see ent consultant any earlier they usually are pretty good .onky thing I know Rev tinnitus is listening the white noise via headphones can help .if yiu have dry mouth I’ve put tips in my blog which I think yiur other half’s has read .

Keep in touch



18 Aug 2019 10:09 in response to RadioactiveRaz

Hi Hazel

Sorry for late reply phone playing up.    Been to the doctors and has given me nerve tablets to help.with pain in my jaw and head which has helped wirh my sleeping as well lol.  

Re the tinitus he didnt say much except for syringing my ears which i dont really want to do.  I think its something I will have to get used to but i will try the headphones and will mention it to the hospital.   Food is still hit and miss but getting better.

Hope you are doing 

thanks Tony


Hope your ok 


18 Aug 2019 10:18 in response to Anchor1707

Hi Ian

Thanks for replying .  I have been to the dentist for a check up and he did x ray me and said all good and I was lucky not to need any extractions pre treatment.

I'll have a look at your blog as well.

Take care and thanks again.





18 Aug 2019 10:26 in response to mabel123

Hi Tony yep once we leave the confines of the cancer units the g p s are a bit hit  n miss   I am ok coming up to a year post radiotherapy last week I could finally see into back if throat area with a magnifying mirror and my uvulas the dangly bit has gone obv melted away with the radiation!  So a bit of investigation and niw kbiw why my throat goes dry after talking as it creates a lot of thin saliva ! Happy days the cancer that keeps on giving but otherwise doing ok 

keep in touch Hazel ps you need white noise music x