Time off work

Hi, can I ask if any partners of people having chemo radiotherapy for tonsil cancer have had time off work? My employer has said that time off can be worked out, but obviously I don't want to take time off until I have to and preferably not at all. However, I don't think he'll be able to get himself to his rad appts next week after his 2nd chemo as the last one wiped him out, and he had terrible chemo brain. Also radiotherapy side effects are now kicking in after 10 treatments.
I'd be interested to hear other carers experiences

  • Hello Toughcookie66

    I think that things will vary from employer to employer. It sounds as if your employer is quite supportive of you if you need time off to support your husband through his treatment. 
    I'm sure that there will be some members here who have chosen or needed to take time off whilst a partner or loved one is going through treatment and hopefully they will pop along to share their experiences. However everyone is different and what's right for one isn't necessarily right for another. If your partner needs assistance in getting to appointments but you're unable to take them then do speak to the hospital as many hospitals have transport options available for patients who need them. It may be that that is something you both feel suits your circumstances better. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

  • Hi there, I went with my husband to every chemotherapy appointment but we arranged transport for his radiotherapy as it was every day.  So call your GP and ask for this to be arranged, pick up from home, delivery to radiotherapy department and collection to go home.   So use this service as it takes a lot of strain off the partner.  My husband loved this way as he got to talk to other people going through it.  Good luck,  Carol 

  • Thankyou Carol, my husband likes To drive himself to his radiotherapy appts if he can, but some days he's not up to it (in my opinion), and he's neutropenic at the moment so I feel like I need some time off so that I'm around if he needs to be taken or just looked after. We also have a13yr old who needs taxiing around.

    Hope things are going well for your husband 

    Lindsay x

  • Hi

    Interested to know how you got on in taking leave as needed to support your partner with chemo appointments?

    My husband is about to start chemo (Sept) every 2 weeks for 6 months. Ideally, I would like to take him to each appointment as he won't be well enough to drive, even though I am not allowed to stay with him currently as they restrict who goes in due to the virus. There are no.other family/friends who can take him.  A stream of different taxis would surely offer an increased Covid risk. I should be the person to support. I would want this. Any advice? 

  • This is exactly what I'm experiencing too. My husband started his treatment two weeks ago and is feeling the same. He drives himself 150 mile round trip every week day for radiotherapy and has a hospital car once a week as he also has chemo on a Thursday. It takes him all weekend to recover but won't accept help with driving. This is driving me nuts as lots of friends have offered their services. The hospital car is ok but you can't book a time slot, so, tend to be in hospital all day, which is draining. I took a weeks unpaid leave last week so I could be at home when he got back, but am going back to work tomorrow and am dreading it. I have a blood cancer myself and am feeling totally drained and stressed out. I can't seem to get any financial support for myself so I can stay home and look after my husband.