The worst rollercoaster ride ever!

I have been on this site about 20 times and chickened out of posting until now! The last time I used an online forum, was when our first baby was stillborn 16 years ago and i desperately needed to speak to people who understand the uniqueness of my despair! Today I feel I need that support again.  We went on to have three more beautiful children, the eldest being our 14yr old boy!  Just over 4 months ago, he came to me after a shower and told me he had found a lump in his testicle!  We saw the GP who referred him for a ultrasound.  Bizarrely, the sonographer who scanned him, had scanned me many a time, through my complicated pregnancies and knew our family.. it was nice to see a familiar face, but it also made it harder for him to hide his concern! Basically, 2 days later, we were told that it was a tumour.  We couldn't have been hit harder, if a train had run in to us face on! Within in 10 days of that diagnosis, we had been seen by a specialist consultant and referred to their partner hospital for surgery to remove the testical asap... He was in theatre for 1hr 17 minutes and around 32 seconds.. I counted them on the pager they gave us to let us know when he was in recovery! It was an eternity, I felt physically sick and was frozen to my chair as I saw my husband pace the floor out of the corner of my eye.  He was terrified as he went in, and came out looking like a 14yr old baby! The enormity of this on him was terrifyingly obvious, when he suffered his first ever panic attack, leaving the hospital that evening.  Since then, he has had 2 CT scans and a bone scan.  A week ago today, we finally received the news that they believed he was all clear and their would be no need for any chemo! I was overwhelming over the moon, so much so that in the car on the way home, I almost passed out.  I had for almost half an hour, breathed in proper breaths not consumed with tension and the oxygen I was enhaling was making me dizzy!  Since then, we have been trying to relax, enjoy the news and get back to normal, but what is normal now! I feel almost as shell shocked from the good news as I did from the bad! I suppose, when you get hit by a truck, you have wounds to heal and scars to mend so you dont just get up and carry on, even if you feel you should! We are a very close family, and our other two babes aged 13 & 8 have been by their brothers side at every appointment and every step.  we are all struggling... can anyone relate?

  • Hi Jess, I think lots of us can relate to your experiences.   Firstly what lovely news that all is clear after a terrifying ordeal and how lovely that he has such a wonderful close loving family.  When you go through all the scans, treatments, operations you seem to be focusing on each one as it happens,  then wham, you're all meant to go back to normal.   A lot of us have discussed this on this site and felt abandoned after the medical intervention.   So yes it's normal to not feel normal.   There is a lot of help from cancer groups, the Mc Millan nurses etc. But you're trying to get away from this type of talk and move on with life.  It's going to be in your mind for some time to come as you feel it hasn't really gone away.  Try not to let your son know you're worried,  he is young and probably wants to get on with his life.  My advice would be to talk it out with good friends who will surely understand that you can't just forget.  Post again if you want, even writing about it clears the mind.  Good luck to you all and I'm sure others will be along to offer more help.  Caz xx

  • Thank you for your reply caz.  I wasn't if this was the right group to join but there doesnt seem to be any forums for parents of chidren suffering this.  We are trying desperately to get back a sense of normality especially for the children, but its hard when you are all so close as they no their dad and I so well and they seem to home in on our every mood.  I really appreciate your advice and will try to take every day as one step at a time.  Thank you.

  • Ours are 40 and 45 years old and they know us too well to.  Have you asked your GP if there is a group that can help you?  Or there are nurses on this forum to ring, they may have telephone numbers.  The moderators may assist you as well.  Don't give up.