The waiting is messing with my mind

I'm a 40yr old single Mum with an amazing teenage boy and have just been diagnosed with breast cancer :(

I feel in shock and I'm so scared I leave my boy! Some days I'm so positive and strong and the others I am a mess. I'm definitely finding the waiting between tests mentally hard. They told me at the breast clinic that they were certain it was cancer and then biopsy confirmed it.

I had breast MRI the other day and the breast nurse rang yesterday to say another lump was spotted so I need another ultrasound and another biopsy. She said it may be nothing but obviously they need to know before they decide what op and treatment etc. She also said I need a CT scan. This is the part that is freaking me out. Does everyone with breast cancer have a CT scan or are they doing it because they think it has spread?

I know we are all different but if anyone can help me with this I'd be so so grateful. I'm just so frightened and keep thinking the worst which isn't even like me.

Thanks for everything on this forum and keep being the brave, amazing ladies and men that you are!xx

  • Hi 

    Sorry to read your news it's totally understandable that your emotionally all over the place.

    I got diagnosed on 31st March by biopsy, mammogram and ultrasound. I did not have a ct scan so cannot say why they have requested, can you call your breast team for advice?

    Do you have a good support network that you can talk openly with?

    Hope you don't have long to wait, try and keep busy/occupied hard I know.

    Best wishes 

    Louise

  • Hi Laurenren,

     

    Sorry to hear what you are going through. I'm 36 and was diagnosed with breast cancer 2 weeks ago. I've had an ultrasound, biopsy and MRI. I will be having another ultrasound next week and possibly another biopsy as it was discovered i have 2 lumps not 1. I have not had a CT scan yet but have heard from others who have,

    It would be really worth calling the clinic and seeing if they can explain more to you. It's hard to take in the information when you are at the hospital. I was asked last week by the breast Doctor if i knew why i had an MRI and i said i'm sure i was told but i couldn't remember. 

    I hope you don't have too much longer to wait until you get some clearer answers. 

  • Hey,

    Thanks for your reply. We seem to have both been diagnosed at the same time! Such a *** rollercoaster and I'm so sorry you're going through it also. My MRI also showed another lump in the same breast so I'm having another ultrasound and biopsy next wk and the nurse said it'll be followed by a CT scan. She said that everyone gets that but I'm seeing that not many people do get it and that's why I'm worried. They are amazing at explaining everything and are a great team, I just have a terrible feeling it has spread but I need to stop fearing the worst and just get on with it. Easier said than done for us all though! Here if you need to chat, we are similar ages and it's just a horrible shock isn't it.

    Take care x

  • Hi,

    Thanks so much for replying. Think I was just having a freak out and needed to vent somewhere and this place is perfect for that! My nurse is amazing and explains everything well, it's just she said to me that it's standard procedure to have CT scan and I have noticed that it isn't really and that's what worries me but I just need to stay strong and see what happens. Think I'm just still trying to process it all.

    I am lucky to have an amazing support network and they are helping loads but I am definitely trying to be positive infront of them so this group is handy for me to say all my fears.

    Hope you're doing ok, it is a horrible journey to have to be on but we'll all get there!

    Take care x

  • Hi,

    You're right it is a terrible shock. I'd not come across anyone else who'd had a second lump discovered. So far I've been told they will look at it on the ultrasound next week and then decide if i need a biopsy on it. I've been booked in for a clip inserting and an unltrasound of my under arm, there was no mention of another biopsy so i'm going to ask at the appointment. 

    A CT hasn't been mentioned to me yet. Although my mum has had breast cancer twice and both times her's was caught very early and she had a biopsy/ MRI and CT scan. I asked her about it and she semeed to think that was normal proceedure. 

    Sending you well wishes. Let us know how you get on. 

  • Your poor Mum having it twice! So glad it was early when they caught it though. Life can be so strange can't it!

    I feel reassured now I know that some people say it is normal procedure, thanks so much to your Mum and to you.

    I had the markers put in on first biopsy and now waiting for ultrasound/biopsy of this new lump which I'm hoping is benign but will just need to wait and see.

    Sending lots of positive vibes your way and here if you need to chat.

    I'll definitely let you know how I get on and you do the same :)

    Take care and thanks so much again x

  • Hi just wanted to add a message to say I was also in the position of an MRI spotting a second lump which then raised the whole concept of facing a mastectomy rather than a lumpectomy. It was a shock as I had to have that area biopsied only a couple of days before I was booked for surgery, knowing that my lumpectomy surgery might have to be postponed while we discussed new surgical options.

    Anyway, they rushed my pathology through so we knew the outcome before my original surgery date. Pleased to report that the second area was confirmed as benign (a radial scar and area of sclerosing adenosis that can mimic cancer). Such a relief! I discussed it with my surgeon and she said this is the downside of MRIs - they are highly sensitive and often throw up 'false positives' which turn out to be fine. But it definitely adds to the overall anxiety while you are waiting.

    Fingers crossed that you both have a good outcome when you get the results back xx