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The good and the bad

27 Mar 2018 01:51 in response to Jolamine

I have been through so much for this past year. Diagnosed twice with breast cancer in both breasts. 2016 September had a partial mastectomy and 5 weeks of radiotherapy. September 2017 diagnosed again with invasive cancer in the second breast and had a complete mastectomy.  Age 63 and so tired

The good and the bad

27 Mar 2018 09:49 in response to Marike

Hi marike

thank you for dropping by to share I am so sorry to hear you have had twice:-(

Do u still work marike ( you are a 50s lady like myself so yr pension goal posts will have changed too grrrr). 

 I don’t know why some people ( like me) are fine and others not so much. 

Hope u have as good a day as u can. X

 

 

 

The good and the bad

27 Mar 2018 10:07 in response to Sandra123

Morning everyone:-)

The bad...reading  with a heavy heart all the new people posting on here. The pain of coming to terms with diagnosis is so palpable in everyone’s written word I can almost touch it:-(

The good... the people posting on here giving support to others is heart lifting. Some still in the midst of it “all” and the ones years after the “event” and still coming on here to show others what can b achieved. 

Have as good a day as you can everyone x 

The good and the bad

27 Mar 2018 21:10 in response to Sandra123

Hi everyone so I go to the doctors this morning to see if I could get to see a doctor to be told I had to wait till the 17th if April which is my operation date so another  receptionist heard me and got me in tomorrow morning had a long sleep this afternoon xx

The good and the bad

27 Mar 2018 21:37 in response to Nikki72

Evening:-)

oh no sounds like my drs! Mine has a system but if u don’t know it u will never get an appt. 

At least u have an appt tomorrow now. 

Glad u slept today grab sleep wherever whenever u can. Your body needs it. Let us know how it goes tomorrow. Here if u need us x

 

The good and the bad

27 Mar 2018 21:58 in response to Sandra123

afternoon ladies ive been the doctors hes given me some iron tablets and he was going to put me on the sick but i told him i would rather work until my operation comes around so fingers crossed these will help xx

The good and the bad

28 Mar 2018 14:15 in response to Nikki72

Afternoon 

Ah good- fingers crossed they are the boost u need. 

hope u are feeling in a bit of a better place today. X

 

The good and the bad

28 Mar 2018 14:27 in response to Sandra123

No bad for me today yeahhh:-)

the good:- had a great day with the granddaughter while other lil one at school...harder shift than work mind;-)

Love the gadgets in daughters house. Alexa switch table lamp off, Alexa- switch kettle on. Alexa turn heating up to 22. Alexa play grans playlist ( music). Luckily school drop offs nd pick ups are  just under 4 mile walk or might not be able t justify the cake nd biscuits I’ve demolished:-)))

have as good a day as u can peeps x

The good and the bad

28 Mar 2018 14:52 in response to Sandra123

Once these tablets start to work I should feel better and not tired all the time mind I'm struggling yo keep awake x

The good and the bad

28 Mar 2018 17:43 in response to Sandra123

Cake needs no justification!

The good and the bad

29 Mar 2018 11:01 in response to rileyroo

Lol true but... will b like a house end if don’t even get up yt put kettle on ha ha.

todays bad... 2 yr old granddaughter diagnosed with  cold urticaria:-) basically if she is warm but touches anything cold ( ie bare feet on tiles or wood floors) she comes out is huge hives ( nearly her full feet going up her legs). Gets them on her face even if warm but a breeze etc. So now on daily doses of antihistamines. Her sister got it around this age too luckily she grew out of it by 4 yrs so hoping lil one will too. Can b very debilitating hoping the antihistamines control it. 

The good...cold but sun shining. Playing the patient for lil one ( she has her drs coat nd bag nd checking me over:-) stories next ( with cuddles) love family time:-)

have as good a day as u can peeps x

The good and the bad

29 Mar 2018 11:10 in response to Sandra123

Daughter had that, started at eightand lasted until she was thirteen. 

The good and the bad

29 Mar 2018 11:25 in response to rileyroo

Aw bless. It’s awful  just come on in the last couple of days. It’s quite unusual- dr brought others in to see it nd took photos. 

Tbh if she is like her sister it won’t bother her too much but it looks really bad. Her toes nd fingers are nearly doubling  in size if comes up on them:-(

really hoping she grows out of it ( apparently it’s unusual for them to grow out of it though so fingers crossed). X

 

The good and the bad

29 Mar 2018 11:44 in response to Sandra123

Hi Sandra... bless her ... my nieces lil one just got scarlet fever ...all these little ones poorly over the Easter brake ... bet they still manage a choc egg or two ... let's hope yr lil one grows out of it too ... sounds really painfull .. at least she can have lots of "nanny time"  

Like your good and not so good theme ... you've got a really lovely thread going here ...

Nikki... keep holding on ... and sleeping can be your bodies way of telling you to slow down so enjoy the rest ... and may all your dreams be nice ones .... chrisie ❤

The good and the bad

29 Mar 2018 11:52 in response to Cornishpastie

Hi there Cornishpasty  ... not looked on here for awhile. . ... as knew Sandra and jolomine was looking after you all ... but just wanted to say will be thinking of you over the next few weeks ... i know its a lot of highs and lows ... its not a bad thing to have a few tears sometimes ... we all get them days .. but you got the boxing gloves on, ready to take him all the way down this journey of ours ... I've got to have a few little lumps out under scar around same time ... we can do this xx

It really does help ... it's like standing up to the bully .... I'm really proud of you ... you go girl ...

Will pop back every so often for updates ... big hug Chrissie ❤

The good and the bad

29 Mar 2018 20:17 in response to Nikki72

 

Hi Nikki,

I just wondered if your iron tablets are beginning to kick in yet?

Regards,

Jolamine xx

The good and the bad

30 Mar 2018 10:35 in response to Chriss

Thanks Chris:-)

bless hope yr lil one is feeling better soon too. Scarlet fever is doing the rounds here too at nursery nd school as is chicken pox. It’s awful when they r poorly isn’t it.

no bad today:-)

good:- it’s Easter weekend... happy Easter everyone. Hope that you enjoy it as best u can.

Family meet nd eat later... fish nd chips... good times x

The good and the bad

31 Mar 2018 11:05 in response to Sandra123

Morning peeps 

no bad today:-)

good:- Been swimming. Done shops. Cakes baked. Nd it’s only just after 11 am Happy heading t Toby Carvery for lunch the maybe a nana nap cos babysitting tonight Happy x

The good and the bad

31 Mar 2018 11:32 in response to Sandra123

Earl Grey tea rooms in York waiting for brekkie, full english. Special treat then home to finish decorating! Ying and Yang!

The good and the bad

31 Mar 2018 14:28 in response to rileyroo

Oh how fabulous - go u girl. You enjoy every min u deserve it Happy x

The good and the bad

31 Mar 2018 16:00 in response to Chriss

Hi Chrissy

How do you keep doing it again and again?

I had a dark day yesterday (sounds a bit dramatic as I'm stage 1). I sat and spoke with my partner about practicalities if things get worse over time. He was really not wanting the conversation but I am such a practical person that I can't settle without having plans in place to ensure he and my 8 year old will be ok. As such I'm thinking of moving some money around for a worse case scenario fund. Today I'm questioning myself as this doesnt feel like im being optimistic, positive and strong....which is what I want to be. What a ride this is huh!

The good and the bad

31 Mar 2018 17:08 in response to Cornishpastie

Hi cornishpastie

Sure @Chriss ‍ will b along soon.

In the mean while just wanted t say - No mistaking it you have been side swiped out of nowhere. Having a “bad” day is totally normal so don’t b so hard on yourself. 

Nothing wrong  with looking at all practicalities... some things just should b in place regardless. I’m grade 2 but when I was diagnosed didn’t have a will - I do now:-) let’s face it my will should have been in place anyway - u know the old “might get hit by a bus” scenario Happy 

I didn’t focus on the practicalities of my treatment... I literally obsessed on them. Bless the lasses who supported me on here throughout my obsessions were my rock ( thank you ladies- you know who u are).

The endless questions on what to take with me on op day ( I mean really it’s - slippers, dressing gown nd kindle) seriously the amount of me t you t me t u questions.... yup obsessed with the detail:-) again... thank u lasses.

Guess it was my way of dealing. Whatever your way is then what the hey you do whatever it takes.

x

 

 

 

 

The good and the bad

31 Mar 2018 17:23 in response to Sandra123

Thank you Sandra. It caught me by surprise as I've been quite positive all through so far and it shook my partner that I wanted to have that conversation. 

Yes I'm starting to obsess on the right pyjamas etc as will be in overnight. Any tips would be appreciated on this lol xxx

The good and the bad

31 Mar 2018 17:48 in response to Cornishpastie

Careful ... floodgates cornishpastie floodgates;-)

Reckon 2 things to remember 1. It’s a bit like being dropped on the edge of an abyss looking down ( being phased and scared is normal) 2. You will be stepping back from the edge to live your life with those you love and care for you. 

Now u have triggered my dormant obsession Happy Wear clothes, pyjamas nd underwear that you can get into easily ( just in case you are a bit tender). So pyjama top that goes on like a cardi nd front fastens. I got a couple of seamless, front fastening, wire free bras ( support without digging in nd easy to fasten). See the trend here- easy to put on nd comfy. 

Ask away on anything you are unsure of. We are all here t help:-) x

The good and the bad

31 Mar 2018 19:52 in response to Sandra123

Ha ha Sandra you made me laugh. Right pulling myself together again. 

I hadn't thought about front fastening bras!!!! Huge tip. Thank you....front fastening everything here I come!

The good and the bad

31 Mar 2018 20:06 in response to Cornishpastie

Just jump in here as well, if you have some bbq tongs around, keep them handy for when you get home. Useful for reaching out to grab stuff without overstretching your arm for the first few days. 

The good and the bad

31 Mar 2018 20:13 in response to rileyroo

Oh that is a good tip. Can I ask how long it took for you to recover. I've had to give work a rough timescale and I've said a week off. They know this is flexible and understand why and aren't putting pressure on me. But I have a stressful job (social worker) so am out driving to visits and carrying files, lots of note taking and typing up of assessments. Let alone the occassional angry person. I want to be realistic but also want to get back asap after for normality. 

The good and the bad

31 Mar 2018 21:43 in response to Cornishpastie

I went back to work after two and a half weeks. The docs at the hospital signed me off for two weeks straight away. I worked half days for two weeks, my boss insisted I didn’t overdo it and then back full time until radiotherapy mid point. I worked half days for the last part of treatment and then for me fatigue really kicked in. I was off for a month after treatment finished. 

The good and the bad

1 Apr 2018 07:12 in response to rileyroo

Thanks Rileyroo. I do wonder if I'm underestimating the time I will need off. To complicate things only my close colleagues know so being in here and there is likely to cause lots of questions. I think I will play it by ear and not put anything in my diary for a few weeks post surgery just in case.

The good and the bad

1 Apr 2018 10:15 in response to Cornishpastie

Hi there ... Bless ya , please don't feel bad ... I've often said on here if I'd still had my kids at home , I'd have been totally different ... I really don't think I'd have copied ... You are doing amazing , start believing in yourself and know those feelings are normal ... 

I had a melt down day when my baby (37)  was having tests and it could av been cancer ... I totally lost it ... Even when he phoned me to say he was o.k , I was sobbing on the phone ,. It was only our buds on here kept me going and held me up ... 

I wish I could send you a real hug, coz I think you need it right now ... And remember, if we all were strong this site wouldn't be needed ... But we've all needed a friend on here who knows what those feelings are like.... I wrote all my letters to loved ones at the beginning ... I even planned the music and service for my funeral ... I made my Emily (photo) a memory book that I'd started since she was two ... Everyone listened to me as I was sure I wouldn't come through op ... We'll that was 8 months ago... All those letters and plans and memory book is put safely away for a while yet ... So I did what you were thinking.. 

I'm so worried about you now ... Look how far you've come ... We helped each other through this, well all help you and down the road , you can join us in helping someone newly diagnosed and you can tell them how scary this journey can be ... Big big hug ... Hold on and when you feel scared look round and picture us standing right there beside you saying "yes you can" please keep in touch ... Our little cournish pastie xxx .