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The good and the bad

8 Sep 2017 20:34

Hi peeps

I have recently been diagnosed with breast cancer. Taking the excellent advice on this website I pretty much started by taking it one day at a time. This does indeed help. 

I thought to share the good and the bad and would love to hear anyone else's should they wish to share.

Today I had both a good and a bad moment. I received 2 letters in the post.

The first was from the hosp confirming my op date (my bad moment) cos my stomach dropped and I had that now familiar feeling of anxiousness take hold for a moment but shook it off cos I know it is needed. 

The good - my 2nd letter - as if... a tax rebate - boom  . Not half put a much needed smile on my face . Reckon a my treat family meal is in order.

Eeee it's the little things ain't it. 

Take care peeps 

Sandra x❤️X

 

Re: The good and the bad

9 Sep 2017 01:39 in response to Sandra123

 

 

Hi Sandra,

Welcome to Cancer Chat. I am sorry to hear about your recent diagnosis.You are doing well by trying to cope one day at a time.The first letter you received today wasn't so bad.. It is going to remove the cancer in your breast and give you the chance to live a normal life once all this treatment is over, so the sooner you start the sooner you'll be finished with it all. The second was a definite bonus.

What surgery are you going to have - a lumpectomy or a mastectomy?

I have had 2 bouts of primary breast cancer. The first was diagnosed 7 years ago and the second the following year. Have you got a treatment plan in place post-surgery?

Please stay in touch. Remember, there is always someone here whenever you feel like talking.

Kind regards,

Jolamine xx

Re: The good and the bad

9 Sep 2017 07:52 in response to Jolamine

Hi Jolamine.

Thanks for the reply. 

I have 2 small lumps in my R breast (no one can feel them nor is there any outward change to be seen nor pain. Caught on routine screening).

They are grade 1 and grade  2 both invasive cancers. On MRI my lymph nodes look clear.

I am having a lumpectomy on the 21st as a day case. They are hoping to make 1 incision to get to both but will re assess on day. They are also taking 2 sentinel nodes for biopsy just in case. 

After the op all things being equal I am to have radiotherapy mon to fri for 3 wks.

Wow how matter of fact does it all sound in the written word when it is so not.

7yrs post diagnosis - I tip my hat to you Jolamine. When we are first diagnosed it's like our lives ended in that moment. This is so not true "living with Cancer" never a truer word.

take care Jolamine 

Sandra x

 

Re: The good and the bad

9 Sep 2017 17:54 in response to Sandra123

Today has been a good day. 

1 it's a Saturday - no hospital-  so... file illness under in pending tray. 

2 Had visit off brother who I've not seen for a couple of months so great catch up with him. 

3 Been to theatre to see Mel Brooke's Young Frankenstein with my 2 daughters what a laugh a minute. Really cheered me up no end. Time for a meal and a glass of wine. 

A day of normality just what I needed 

take care everyone. 

Sandra

Re: The good and the bad

10 Sep 2017 00:47 in response to Sandra123

 

Hi Sandra,

It does sound very matter of fact doesn’t it? Unfortunately, when you are the individual involved, it doesn’t feel quite like that.

I had a lumpectomy and sentinel node biopsy the first time, followed by Tamoxifen. The second time I had a double mastectomy followed by Letrozole, which I have recently finished taking. I have had a few false alarms too, so I know only too well how scary it is waiting for tests and results.

I am glad to see that you do not have too long to wait for your lumpectomy. Isn’t it great to have no clinics or hospitals to visit? It sounds as if you had a lovely family day to-day I bet that it was good to catch up with your brother. What ages are your daughters? Young Frankenstein sounded like good fun. Getting back to normality even for a short while is just what you needed.

I shall be thinking of you on 21st and hope that all goes well for you.

Kind regards,

Jolamine xx

Re: The good and the bad

10 Sep 2017 08:05 in response to Jolamine

Hi Jolamine  

I am 60 and my daughters are 38 and 34. 

I took early retirement Nov last year. I am so glad I did- means I can concentrate on what I now need to when I need to and not worry about work.

I too will commence Letrozole as my cancer is oestrogen receptive. Hoping no side effects. I am someone who has always been fit and healthy who has only ever taken the odd paracetamol so this whole thing has side swiped me. 

Is everything ok with you Jolamine - I noticed the time of you post - or are you just a bit of a night bird Happy 

Take care and thanks for sharing- knowing there are others who have stared into the abyss and stepped back is reassuring. 

Sandra x

Re: The good and the bad

10 Sep 2017 11:52 in response to Sandra123

 

HI Sandra,

I was 61 and still working when I was diagnosed. Since then I have had to take a back seat at work, because I have had so many clinics to attend. Like you, I have always been fit and healthy, but so much has hit me since I was diagnosed that it feels as if I am a different person.

You ask about the crazy hours that I send my posts. I am a night owl (have always been) and I remember how I felt when first diagnosed. I couldn’t sleep and I really appreciated replies from some great people on this forum at all times. I found that the worst time for me was overnight when my imagination ran riot. I was particularly scared at the time, because I nursed my Mum with secondary breast cancer for 12 years. She was only told that she had metastases in liver, lungs, bones and brain in her final year. We lost her that year, but it was horrendous to watch her pain and suffering to the end. Having had so much help when I needed it, I hope that I am giving a little back by doing the same for others.

I have had 2 bouts of breast cancer and a few scares - the latest last week. I had a radioactive bone scan last Wednesday and got the results on Friday. Fortunately, it was good news for a change. These scares have become almost routine, but there is always the worry until I get the results.

I hope that your op goes well and that you have no side-effects from Letrozole.

Kind regards,

Jolaine xx

Re: The good and the bad

10 Sep 2017 17:05 in response to Jolamine

Hi Jolamine 

Bless what a gem you are. So glad you had good news sounds like you are over due some. 

Glad it's you're a night owl and all is well - I like many others appreciate your time and support-thank you. 

You mention you feel you are a different person - I get that but at the same time, you have got to where you are today because of your innate strengths and the core of who your are. One of these strengths is your ability to adapt and change when needed -you are who you need to be. I hope like you I have the strength in me to change as and when I need to.

Take care Jolamine onwards and upwards 

Sandra x

 

Re: The good and the bad

13 Sep 2017 15:01 in response to Sandra123

Today I attended the hosp to have the marker iodine seeds put in - was very similar to having a biopsy but easier. So next step is my op next Thursday. 

The good- while there met another lady having her seed put in ready for her op on same day - both of us said see you next Thurs. A friendly face to look for on day of op.  

Re: The good and the bad

23 Nov 2017 09:09 in response to Sandra123

Not posted on here for a while so just t say

its early so delighted  to say no bad yeahhh.

The good:- recovered from op with no problems (was no where near as big a deal I had made it in my head). This wk just finished 3 wks of RT. Was fine throughout not particularly tired and skin not been a problem ( only 2 appts ran on time the norm seemed to be running 45-60 mins behind bless them). Started letrozole and although getting some hot flushes I can deal with them. 

I have met some lovely people on my journey I am honoured and grateful.

My heartfelt thoughts to those starting and continuing their journey. X

 

Re: The good and the bad

23 Nov 2017 09:29 in response to Sandra123

Hi there ... just wanted to say well done brave lady ... not posted before as I could see you were being well looked after by jolomine... she's amazing .... but just wanted to send you a big hug ... I thought the same as you ... I've had a few ops along the way ... but mastectomy was the least stressful... but the run up to it is scary ... so now you've done the hardest part , let's hope it's on the up now .... 

So sending you a big brave hug ... chrisie xx 

Re: The good and the bad

23 Nov 2017 11:08 in response to Chriss

Ah thanks Chrisie

Just done final add up its actually 13 wks and 2 days from date of diagnosis of breast cancer to last day of  RT - meet surgeon in April for review then onto an annual review.

what a ride it’s been. How quick does the treatment machine kick in. Carrying out its work while u feel like you  are being dragged along clueless ( despite their valiant attempts to explain everything). I went from someone who wouldn’t consider sunbathing top less to whooping them out at the drop of a hat:-) laying there chatting to male radiotherapists while they draw on me boob:-) who knew:-0

Then discharged.... cut adrift and suddenly your days are your own again. Me.... I love it but totally get why some struggle. 

Thank you for saying brave but felt more like lack of choice. The new lifestyle we didn’t choose is without a doubt made easier by the support of those on here. From the been there done thats to the I am going through this too. The nervous chatting in the hosp waiting rooms and the sharing of stories. Yup humbled and grateful to everyone who has touched my life through this. X

 

 

 

Re: The good and the bad

24 Mar 2018 09:29 in response to Sandra123

Not posted on this thread for a while but here is today’s good nd bad...

The bad:- yesterday  bumped into a friend not seen in a while in the school yard while I dropped off my granddaughter. She told me her husband has prostrate cancer which has spread and she has been diagnosed with leukaemia. Sad catch up:-(

The good:- My daughter who is doing a career change has completed her 1 st yr exams ( to be an electrician) and got a distinction... well proud:-)

Life continues don’t it. 

Take care peeps x

Re: The good and the bad

24 Mar 2018 11:30 in response to Sandra123

Hey Sandra. Im just starting my journey and enjoyed reading this thread. I've been diagnosed with stage 1 invasive breast cancer in left breast with an additional area that although currently benign is showing abnormal cell change and growth. So out they ate both coming. I'm scheduled for my OP on 13th April. Sentinel nodes to be removed for testing also. Then if margins and nodes clear I will also be for 3 weeks radiotherapy. As my cells are also ER+ I will need hormone therapy but that's a doozy. I'm staying positive and reassuring everyone around me (It's ok I'm not dying yet). I dont think people know how to react to me when i say things like that. My other half thinks I'm either coping amazingly well or in denial. Anyways i thought id say hi as your journey is so close to the one im about to take....plus I like the idea that for every negative there is a positive...karma and balance. Maybe I should buy a lottery ticket

Re: The good and the bad

24 Mar 2018 11:46 in response to Sandra123

Hi there Sandra. . It's a shame about catch up, but maybe helped each other, knowing how many of us that are now on this journey...  

But high 5 to your daughter ... electrician a ... that should come in handy ... 

I'm just waiting to have little op on scar (again) as got 2 to my lumps behind it ... had a small hole that never healed ... told them to 're do months ago ... oh well here goes ... 

Just sitting with my granddaughter. . Ain't grandkids the best for taking mind off things ... any ways Sandra ... keep going hun ... take care ... Chrissie x