Tams Terminal

Just wrote this for my profile . . . cut and paste!!!!!!

Lung cancer diagnosed in September 2014: treated with op to remove left upper node and course of chemo (just in case)
Year later brain mets and told I was terminal with average prognosis of 6-9 months; treated with gamma knife surgery which was repeated a year later (October 2016) for a new tumour.
Still here and living reasonably without any medical intervention. Only real issues are related to the cancer treatment which has left me with peripheral neuropathy which will never get better.
I have been banned from Macmillan community forum for making statements about sugar feeding cancer: this was seen as 'negative' and 'unsupportive' of those people who enjoy cake. I'm banned but my comments are still there?
I'm hoping to find more empathy and support for my views on this forum??????

  • Hello Tams Terminal.  Glad you are still with us and "living reasonably" as you say.  This is a gentle forum in the main.  Usually - not always - we don't do dogmatic statements. You are of course entitled to say your opinions on things but please don't bang on about them!  Like any bunch of people we have different points of view; some people reading my posts have probably disagreed with me from time to time and I have on occasion thought similar things about other posts.  But then I just let it go.  So welcome and best wishes to you.  Annie

  • Hi Tams Terminal

    The problem with the idea of sugar feeding cancer is that it is unhelpful. 

    Every gramme of sugar and starch carbohydrate one eats is broken down by the digestive system into basic glucose molecules, which circulate in the blood.  Yes, cancer cells feed on them, but then so does every other cell in your body. Glucose provides the energy that drives the body and without it we die.

    If you eat sugar and cake, then all the sugars and starches are broken down into glucose that goes to feed all the cells in the body, including the cancer cells. But the same is true if you eat a potato, or peas, or any other starchy vegetable. Once it has been broken down into glucose, the cancer cells are unaware of the origin of those glucose molecules.

    Now, if you feel better on your diet, then that's absolutely great. Keep going. But just be aware that sugar feeding cancer is simply a myth.

    So, with that out of the way, let me be the first to welcome you to the forum. 

     

  • I like cake. I'm about to have a cup of instant coffee, with a flat teaspoonful of sugar to make it taste just right. If I have corn flakes later on, and I well might,  I'll have slightly less than a dessert-spoonful of sugar on them.

    My diet would be described as atrocious by any dietitian or medical professional and probably by most other people. I don't care.

    I enjoy reading about 'alternative' therapies, mostly because they demostrate the inherent idiocy of a large part of the human race.

    I'm truly stunned at the amount of people who'll disregard doctors and treatments that have undergone peer-reviewed clinical trials but will immediately believe any outlandish rubbish posted online by some random tinfoil-hat-wearer.

    The absurdity of the human condition is truly a joy to behold.

    I have to caveat the above of course, by acknowledging the possibility that I might be wrong and that all those whose opinions differ, may be right.

    And if people are happy in their belief in the efficacy of chewing lightly killed special black bean apricot seed juice, derived from a secret plant that grows abundantly in the depths of the Guatemalan rain forest, specifically as a cancer cure, who am I to contradict them.

     

    Best Regards to all

    Taff

     

    Ahhh, Nescafe.

  • Instant coffee! Instant coffee!!!!

    Have you no shame?  

  • I keep it in the cake tin.

  • Thanks for your response.  I admit I feel very defensive after my experience on Macmillan and don't usually get so aggressive - I've even avoided steroids so far so no excuse for the aggression!!!  Perhaps if the cancer was anywhere else in my body I might not be so strict with the diet but losing my mental capacity frightens the **** out of me.
     

  • Nescafe - seriously????????  Do you know what Nestle is doing bottling water (in plastic) in drought ridden California.  Apparently without permits.
    My union led a campaign back in the 1970's against Nestle products and I have managed to avoid their products (mostly) even since.  Really miss the Lion bars!!!!!!

    I love cake too but have managed to wean myself off the sugars - took a good four weeks but I haven't had a seizure in over two years.

    It scares me that if my brain stops functioning I will be at the mercy of my teenage son on the autistic spectrum to take care of me.

  • Seriously, I don't care about Nestle, I just like Nescafe. And lion bars as it happens. 

    If there are certain things that trigger seizures and you can control them or avoid them with diet, then I'm all for whichever diet it is. Risks versus benefits and all that. Same with any treatment.

    My point is this though - have a look at the following link. You don't need to read it thoroughly or understand it, a mere skim will do. It's basically about a clinical trial evaluating the benefits of two stem cell transplants against one - 

    https://ash.confex.com/ash/2017/webprogram/Paper102360.html

    When any alternative treatment, diet etc proponent produces a similar peer reviewed paper I might be prepared to listen to what, until such time, is tinfoil-hattery.

    Logic dictates that if sugar is good for cancer then it must be bad for me. Yet I've had no apparent negative effects from continued use. And if standard protocols are so bad for me, why am I in remission?

    Radiotherapy got rid of a plasmacytoma that was destroying my iliac bone yet destroyed my sigmoid colon. Risk v benefit even so, falls on the benefit side. No amount of juicing would have had any beneficial effect that's proven and reproduceable but would have caused copious vomiting and damage to my GI tract.

    Whatever, I wish you well.

     

    Regards

    Taff

  • You seem to have fitted right in here!  Take care of yourself in the way that makes you feel better and for the rest - as Telemando says - put your faith in the doctors. I look forward to hearing from you further.  Annie

  • Responding to the comment "I enjoy reading about 'alternative' therapies because they demonstrate the inherent idiocy of a large part of the human race" I don't think we need to bash people whether it's meds or natural remedies that someone chooses to take. Call me an idiot if you want but alternative therapies have helped me and my dog! There is times we have to take meds (risk verses benefit) but for those of us that are allergic to them and have been harmed by them we have to find natural alternatives. True not all of them are safe, either!

    Tams welcome to the group and I am sorry about your lung cancer and your peripheral neuropathy :(