Thank for for your kind words. Yes I have made a difference it had happened to too many people in the same hospital I only found this out by speaking to people in the community including a police woman who lost her grandmother through the driver being administered without the families permission, I would ask people why didn't you say anything and there answers were all the same they didn't think anyone would listen to them but later on regretted not speaking up. When I spoke up it was because my heart and my intelligence knew they had done something very wrong ,for God's sake my dad was sitting in his chair the day b4 eating talking and drinking little did I know that the next day the driver would be put in and omg will never forgive myself for not stopping them when I got the outcome of the NHS report I was not happy as I knew they were covering their backs 19 pages, but your right davek it doesn't happen in that hospital the new head nurse told me herself iv made a difference and she herself was crying at the meeting so I have to hold onto that so something good did come from dad's awful death
My heart is breaking for you because I know exactly how you feel God love you, and I wish I could help you I'm not sure if I replied to you before but I'm here if you want to talk xxx bless you xxx
I am currenty sitting here after reading all 6 pages of this forum. My dad is in the next room dying and tomorrow they are going to fit one of these devices. After all i have read on here and from opinions of family members who have had relatives on these things i am set against the idea. The problem i have is my mum is in a state and wont listen to anyone. Her two sisters have been trying to talk to her re it but she just breaks down crying. I intend to collar the two nurses before they enter our house tomorrow and ask why they feel he needs one.
He is not in constant pain. He can still swallow and has been eating small amounts of food today so why do they feel it is neccesary. I will be honest i dont have a lot of time for the medical proffesion and i do intend to have a go at the nurses tomorrow, but i dont want to upset my mum and ultimately it is her decision.
I've been following this thread since the day it started.
My own experience, like that of most people, was that this equipment helped keep my Mam's pain under control whilst she was dying, without her having to suffer multiple injections every day. When I inevitably reach the stage where I need a steady stream of painkillers to avoid dying in agony, I will insist on having one.
I have nothing but sympathy for anyone whose experience of syringe drivers was horrendous, especially where they were misused and legal action is being considered, but like most other medical devices they are only as good as the clinicians who use them.
By all means challenge the nurses about why your Dad needs a driver, but please bear in mind that this is only a tool like a sophisticated syringe designed to deliver a steady flow of medication to avoid any highs or lows and to reduce the number of injections required.
Hi I was in this position with my dad a month ago , he was only eating a little for 5 weeks as he was upset my brother was dying , and at 95 went down hill fast and I knew he had given up and was dying , he ate custard on the Monday but wouldn’t eat and got worse after that , he was having a job to breath and I could see the fear in his eyes and he was becoming agitated, and I agreed with the dr and nurses to have a syringe driver for dad , it wasent morphine but something to calm him , and he died the next day with me beside him , but that last day the fear in his eyes had gone and he was totally relaxed he was just asleep , I hated to see his fear and I totally think it helped him pass peacefully, sorry for what you are going through x
I realise this is an old post ..I just wondered how you got on with things? The same thing recently happened to my mum ...she was forced to take morphine and when she said she didn’t want it they put her in the driver ...and she went from being responsive to totally vegetative within a day and this starved and dehydrated to nothing and was gone in 6 days ...I think there is something sinister behind many of the reasoning behind the use of theses drivers ...and it should come down to choice not forced upon people and an awful experience for the family who are not informed or warned in many cases such as ours and I guess yours too ...and I got stonewalled trying to take it further and get answers and just brushed off ☹️ Hope you found comfort...I wish that for myself and family but still so very painful now x
I AM SO SORRY FOR YOU AND YOUR FAMILY BECAUSE I KNOW THE PAIN YOU ARE GOING THROUGH MY LIFE HAS NEVER BEEN THE SAME AFTER WATCHING WHAT THEY DID TO MY FATHER I LIVE IN A SMALL TOWN AND HAVE TO SEE THESE PEOPLE WHO TOOK MY DAD'S LIFE, BECAUSE THAT'S WHAT THEY DID AND ARE STILL DOING IT IN THAT HOSPITAL MY FRIENDS DAD SUFFERED THE SAME FATE LAST MONTH AND ARE STRUGGLING TERRIBLY , YES DARLIN I TOOK IT AS FAR AS I COULD WITH THE NHS, A NINTEEN PAGE REPORT , THE ONLY GOOD THING THAT CAME OUT OF IT WAS 13 RECOMMENDATIONS WERE MADE FOR THE HOSPITAL SO A LOT OF CHANGES WERE MADE AND THE ALCOHOLIC NURSES WERE SENT FOR MORE TRAINING, I GOT AN APOLOGY FOR ALL THE MISTAKES THAT WERE MADE DURING MY DAD'S STAY IN THAT HOSPITAL BUT THEY STILL WILL NOT ADMIT THAT MY FATHER'S LIFE WAS TAKEN PREMATURELY, OH GOD I STILL EVEN BLAME MYSELF FOR NOT STOPPING THE SCUM FROM PUTTING THE DRIVER IN IT WAS SO AWFUL IL NEVER NEVER EVER GET OVER IT COMPLETELY BUT IV HAD TO TRY SO HARD TO START LIVING MY LIFE FOR THE SAKE OF MY 3 SONS MY GRANDKIDS AND MY LOVLY FIANCE, THEY ARE KILLING PEOPLE ON THE NHS BUT NO ONE IS LISTENING, I ACTUALLY THOUGHT I WAS GOING TO DIE WITH A BROKEN HEART, I PRAY ONE DAY THESE PEOPLE GET THERE KARMA I REALLY DO, I'M NOT A BAD PERSON I'M SO SOFT HEARTED AND WELL LIKED IN MY TOWN SORRY I DON'T WANT TO SOUND BIG HEADED BUT IT'S SO YOU CAN GET AN IDEA OF MY PERSONALITY, BUT I CAN TELL YOU I'M DAMAGED BEYOND REPAIR BUT I HAVE TO FOCUS ON MY FAMILY , ONLY YOU KNOW IF YOU WANT TO TAKE IT FURTHER, ALL I CAN SAY IS FOLLOW YOUR HEART AT LEAST I GOT SOME CLOSURE I SUPPOSE EVEN THOUGH IT WASN'T THE OUTCOME I'D HOPED FOR I WAS DRAINED BY THE END OF THE INVESTIGATION I MISS MY DAD SO MUCH GOOD LUCK MY DARLIN WHAT EVER YOU DECIDE AND I'M ALWAYS HERE IF YOU WANT TO TALK OR NEED ADVICE GOD BLESS YOU
HI AGAIN JUST WANTED TO TELL YOU THAT WHEN THE 4 NURSES WERE INTERVIEWED OVER MY DAD'S DEATH THEY ACTUALLY ALL LIED IN THERE STATEMENTS WHICH MADE ME ACTUALLY PHYSICALLY SICK WHEN I READ IT IN THE REPORT IN FRONT OF ONE OF THE NHS STAFF DOING THE INVESTIGATION OVER MY DAD'S DEATH, I ACTUALLY PUT THEM OUT OF MY HOUSE, IT WAS THEN I LOST ALL FAITH IN PEOPLE, ALL I CAN SAY IS WE WILL NEVER BEAT THE NHS ABOUT DRIVERS THEY WILL NEVER ADMIT WHAT IS GOING ON XX
ahh,Thankyou for replying and yes I totally agree and understand.They trybto make you think you’re going crazy and being hysterical ...the nurses at the care home /hospice my poor mum was were actually goading us repeatedly saying do we have lasting power of attorney ,which they knew we didn’t and we’re like well we can do as we wish then ...I even tried to get the local MP involved so my mum could be returned home but it was too late by then and they’d already bullied my mum and pretended she gave authority for the driver when she couldn’t even speak ....I knew they were lying because I was there and my mum made a noise and they said oh you need more pain killers ...and got morphine ready when what she actually wanted was a drink of water because of the dehydration...I feel the same as you ,i’ll Never get over what they did...I accepted she would die but not the way thy made it happen and not as cruel and fast either x best wishes