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Syringe Drivers - Did it speed up my mum passing away??

18 Apr 2017 23:55 in response to javakidson

I'm so sorry for you and what you had to watch your mum go through it sounds awful , I know how you feel.I won't go on to much as you are obviously broken hearted and a lot to deal with at the moment, I was of this chat for a while but I'm here if you need to talk god bless you and  Take care x

Syringe Drivers - Did it speed up my mum passing away??

29 Apr 2017 19:40 in response to isabella

Hello, Isabella.

My mum died one and a half years ago, following a heart attack. One minute, she was ordering her dinner. The next, she was given a driver, became unresponsive, and we lost her a few days later.

We have never really known whether or not the driver sped up her passing. Having come across this thread today, I am keen to know where your investigation is up to.

I am truly sorry for what you went through with your father. I hope you are beginning to come to terms with it.

My very best wishes to you x

Syringe Drivers - Did it speed up my mum passing away??

30 Apr 2017 10:48 in response to jasmine99

Omg your mum was given the driver after a heart attack? That dosent make sense to me .it's quite obvious that the driver had something to do with it.why give your mum the driver?was she in a lot of pain? You poor thing it's not to late to ask questions at the hospital where she died it would help you move on x

Syringe Drivers - Did it speed up my mum passing away??

13 Jun 2017 13:34 in response to jasmine99

I have read a lot on this site over the last few days. My mother is close to the end with pancreatic cancer. My sister and I both agreed that mum should be put on a syringe driver to relieve her suffering which is huge. We were told it is normal for someone to be on a syringe driver for 3 to 4 days. My mum is now on day 13 and still she is with us. So I know there has been a lot said about them speeding things up but in my experience that hasn't been the case. My sister and I and all the staff looking after mum are doing everything we can to keep her comfortable and as pain free as possible but she is still suffering terribly and has even begged us to let her die. The syringe driver has brought some relief but we really wish for mum's sake that it had speeded things up. I can only hope that today she will get the peace she needs and deserves. 

Syringe Drivers - Did it speed up my mum passing away??

13 Jun 2017 15:31 in response to MalcolmM

Hi Malcolm,

We had a similar positive experience with the Syringe Driver when my Mum reached the end of her life.

Syringe drivers when used correctly and appropriately are a good tool. The negative experiences seem to happen when something goes wrong with the doseage, the titration or the frequency the drugs are given - the wrong drugs being prescribed or patients being put on a syringe driver too early or too late.

best wishes

Dave

Syringe Drivers - Did it speed up my mum passing away??

13 Jun 2017 22:18 in response to davek

Thanks Dave. I think that what you say is true it is about doseage. We feel mum's doseage is not enough as she continues to linger and her breathing is now unbearable to listen to and the meds for that at least are having no effect as she sounds like she is drowning in her own secretions. My dad died of breast cancer some years ago and had the 'death rattle'. At the time I thought that was awful to listen to but it was nothing in comparison to listening to my mum over the last two days. I just hope each day for her release and I can honestly say I love my mum dearly and it is horrible to watch her suffer like this and I can only wish that syringe drivers did speed up the end for her sake. 

 

Syringe Drivers - Did it speed up my mum passing away??

15 Jun 2017 08:51 in response to MalcolmM

Dr Shipman has a lot to answer for, not least the fact that the control of opiates at the end of life is now far more tightly controlled.

I hope your Mum's pain is under control.

Best wishes
Dave

Syringe Drivers - Did it speed up my mum passing away??

15 Jun 2017 09:14 in response to davek
Hi Dave you are right about that but I think it is time Society moved on and understood that, if properly controlled, Euthansia can be a good thing. It's about ensuring that it is the dying person's wish and not anyone else's and about proper regulations. It works in ther countries so it can work here. If there are abuses then that is what there are laws for. My mother continues to linger. We have no idea if she is pain because she has been so distressed and she cannot communicate to tell us what is upsetting her. She is now on day 15 of her syringe driver which now has Morphine, Midazolam and Buscopan in and STILL she lingers. It is heartbreaking and emotionally draining. When she could speak she begged us to let her die. What more can we do? Every day my sister and I hope it will come to an end for her. No-one should have to go through this and no-one should have to watch it. A lot of people around me have said, and I agree, you couldn't treat an animal this way or you would be prosecuted for cruetly. Why is an animal's suffering more important than a human being's?

Syringe Drivers - Did it speed up my mum passing away??

15 Jun 2017 16:27 in response to MalcolmM

Heart-breaking I know. My own views on euthanasia were established at an early age when my Grandma suffered several strokes and had resulting major losses of her physical and mental functionality. That was almost 50 years ago, but my views are unchanged. 

Hopefully one day our politicians will be better aligned to the public's views on the issue.

Syringe Drivers - Did it speed up my mum passing away??

15 Jun 2017 17:00 in response to davek
Hi Dave Yes, let's hope so. I am, at present, spending my time in my mum's room drafting a letter to my MP on that very subject and the failings mum has experienced in the NHS. I don't, regrettably, think it will change in my lifetime but who knows.

Syringe Drivers - Did it speed up my mum passing away??

31 Jul 2017 12:48 in response to michy1
Hello, Just came across on this post while searching for syringe driver. My husband is very weak right now as he had bowel cancer came back and spread to his liver since November 2016. He is at home under hospice care. I have been looking after him here at home and since last week he is in pain and very weak. The district nurse visit him and talking about to put a syringe driver? I had a feeling that it will make him comfortable toward passing? I don't know whether I let him have the driver? I have a lot of conversation with people about this driver and I'm not happy to have it? I don't know what is best? Sorry about your dad. Thanks Maria

Syringe Drivers - Did it speed up my mum passing away??

31 Jul 2017 13:21 in response to amira

Hi Maria,

Based on my experience within my own family (my Mum died peacefully at home) I want to have a syringe driver when I reach my own end of life with cancer.

The driver simply enables a controlled amount of pain killers to be administered without the need for countless injections which can be very distressing for both the patient and their family.

I recognise that not everyone has had such a positive experience of syringe drivers but where there have been problems these have almost certainly been down to inappropriate use of the drivers or issues with the drugs used.. 

I don't think the term "syringe drivers" helps. It gives the impression that the drugs are forced into the patient's body rather than injected in a similar way to a manual injection but without constant human intervention. 

Best wishes

Dave

Syringe Drivers - Did it speed up my mum passing away??

31 Jul 2017 13:28 in response to davek

A few weeks ago I chanced across this interesting article from the Nursing Times which explains what syringe drivers are and the common misperception by families that these are associated with imminent death.

https://www.nursingtimes.net/download?ac=1300450

Syringe Drivers - Did it speed up my mum passing away??

31 Jul 2017 23:47 in response to davek
Hi Dave Thank you for your reply and information. Right now my hubby is comfortable, he has pain patch and I have given him Oramorph. He only had one injection for nausea a week ago. I will have a think carefully if I let the nurse to put syringe driver on him. Thank you again. Kind regards Maria

Syringe Drivers - Did it speed up my mum passing away??

8 Nov 2017 23:31 in response to amira
Hello to the last few posts, Maria, davek, Amira and MalcolmM I hope this goes through as I haven't posted before. It's a year on Friday since I lost my dad to kidney failure due to prev cancer ops, unfortunately no Macmillan, no cancer help etc as it was his kidney ( but the cancer caused it) Me and mum (I'm only one) muddled through for a few months then the last 2 weeks of my dad's life was horrendous. 2 days before he died the gp sent ME for the prescription of syringe driver and morphine , I came across this site whilst I was thinking abiut it all. I think my father should have had this at home for a few days. He didn't, he was taken to palliative care on his last day and prob had it a few hours before he passed away. I have only just found the courage to write a letter to his go who are holding a meeting this week, I would say they work at the end for a more peaceful time Tessa