Hello, again I wrote on here before about my concerns of IBC I’ve had most of the textbook symptoms and everything just points to that, I’ve heard the redness can come and go, by a lady who had this herself and it’s left me even more terrified because mine is mainly there but every now and then has gone but always comes back, the redness now is clear to see and strangely in patches over my breast. I wrote on my last post that this has been going on for 10 months - a year but recently looked back and realised it's been 7 months* at present I feel like I have sunburn on my breast the only way to describe it (I don't actually have sunburn) I mean pain wise it feels burning on the skin, my breast feels so heavy and swollen and hasn't gone down in these months, my underarm today is even more swollen I keep getting a burning/pulling and aching sensation and it won't go, there's lumps I'm unsure if lymph nodes but I'm positive that are huge and painful to touch, my other armpit feels smooth and nothing painful, I have never experienced so much pain in all my life and I've given birth so it's crazy if I'm honest, none of the symptoms have got better, I've had ultrasound which have shown thickened tissue, a tiny lipoma and prominent lymph nodes of which they couldn't explain said it was fine and sent me on my way.. it doesn't feel or look fine, I'm in unbearable pain practically bed ridden at this point it sounds silly but it's true, I'm having severe shoulder and spine pain in certain parts and I've had a constant headache for a week now, pain meds don't touch any of the pain, I can't seem to tie any of this to anything apart from IBC, I know there's many people that come here and post this and I feel for everyone on here it breaks my heart. I honestly can't cope, I know ultrasounds miss IBC. Most of my other symptoms are on my other post. I message my private derm who said he will do a skin punch biopsy on the 1st of may earliest I could get but I'm worried with the on and off redness he won't do it, I'm honestly praying he will.. my life has been ruined by this I had to give up my job, I don't have a life anymore, I'm crippled by whatever is going on and doctors just seem to look at me as if I'm crazy, I'm really not crazy, I'm sitting here crying as I'm writing this because I feel like I've been failed by doctors, my son may lose his mother because they failed me and I'm honestly so scared, so upset and have never been in such a horrible situation. I don't know where to turn, everywhere sends me back to my GP I've begged him for an MRI and he said no because my ultrasound wasn't concerning, I can't get anywhere and I'm at a loss. I've called so many places, my mum has to call an ambulance the other day as I was shaking on the floor in pain and even they couldn't help me, I'm sorry if anyone thinks I'm selfish by writing this but I really need help. My mum, other family members and friends can see the changes on my breast and see the pain I'm in everyday and they're at a loss now too. Please help :(
