Hi, I don't know where else to turn so I'm hoping to get some advice about what to do next please. I started getting typical bowel cancer (or IBS/Crohn's) symptoms in 2018 when I was 26, was told I had anxiety or IBS after testing negative for celiac & received no treatment. Over time these symptoms got worse, I went from about 88kg to 64kg, and developed many food intolerances that cause pain and extreme diarrhea, also bleeding from the rectum or anus sometimes. I went back to the Dr a couple of times and he made me have an MRI and load sof blood tests, but found nothing and discharged me. Now I can eat pretty much only meat, potato, non-green veg, egg and rice - if I stick to just these foods, I'm usually symptom free, but my diet is unhealthy and not balanced.
Anyway I'm posting here because about 5 weeks ago I was called back to the hospital where I was originally diagnosed with IBS/worrying too much. They told me the Dr I saw was having all his cases reviewed because he was just diagnosing everyone with IBS and not doing the right tests - the new gastro told me the tests I had didn't rule out anything since they were looking at the wrong part of my bowel. I asked if it ruled out Crohn's or cancer and she said no. She told me I needed to urgently have stool test, blood test and a SehCAT test, and also a colonoscopy but that would take "a long time to come through". I did all the other tests but weeks later I've still heard nothing. I lost all trust in them and I'm so scared now, I'm only 31 and I wanted to start a family all through lockdown, now I'm terrified I've missed my chance because I'm going to die of bowel cancer, since if I have it then I've had it for at least 5 years now.
Please can someone tell me if there's anything else I can do to get checked for cancer? Or how to get results from a hospital? I just want to know if I'm dying or not so I can plan the next few years. I can't afford to go private since my insurance has my "IBS" as preexisting. Thank you
