Hello Nikita,

As I noticed this is your first post with us I just wanted to stop by and welcome you to our forum.

I'm sorry to hear you are feeling so poorly, it sounds like you're having a really rough time at the moment and I'm sure that not knowing what's behind them is not making things easier.

I'm glad to hear that the colonoscopy came out clear and that you will have an endoscopy coming up. Do you have a date for it yet?

It is perfectly normal to feel anxious when you are experiencing a situation like yours but try to focus on other things for the time being, if possible. If you find yourself unable to cope, however, and feel like speaking to someone medically trained might help, our cancer nurses can take your call. Their phone number is 0808 800 4040 and they are available Monday - Friday from 9 a.m – 5 p.m.

I hope you feel better and find some answers soon, Nikita. Once you know more, come back if you find a minute and let us know how you're getting on.

Wishing you the very best,

Renata, Cancer Chat Moderator

Dear Nikita, when I first read  your post I felt at a bit of a loss how to respond as I knew so little of many of the things that you are going through.  So I hope you will accept a bit of reaching out from one woman to another just to say you don't sound at all hypochondriacal and I am sorry you are feeling so unwell.  I haven't had much experience of breast cancer but I think that google is generally accepted by the people here with experience to have proved totally unrealiable.  Of course sometimes people do turn out to have cancer but most of the time not. 

I would suggest that before going to your  consultations you write down, clearly and factually, what you want to say and what you want to know.  Then stick to the script!   It helps to take someone along with you who can write down what has been said also and thenafterwrds you are quite clear as to what has been said.

Sorry I cannot comment more on your symptoms but I just wanted to say "hello" and wish you well. Annie

Thank you ladies sorry for the late response just a quick update, so the consultant said that they could feel how lumpy it was under my left armpit and on the side of my breast, she felt a big lump under my armpit which I never knew was there and I was sent for an ultrasound scan which showed swollen lympnodes and fatty tissue and was told I have nothing to worry about and I was discharged, 8 months down the line the swelling has become worse and is causing me a very uncomfortable ache under my left armpit and the swollen lympnodes seem to have got bigger. I jade a small node on my left collar bone aswell which I now have them all the way along my collar bone underneath and over the collarbone  I feel richness when I turn my head in my neck and chest. I went back to the gp and asked to have them biopsied as, I know from working in plastic surgery outpatients for 4 years that lypomas are slow growing, I worked in skin cancer clinics also and watched many student Drs be taught how to check for lympnodes so I have a pretty good idea what I'm looking for, thr gp requested an ultra sound scan  which is in 4 weeks and I'm just not confident with this as this didn't seem to resolve the problem I had then and still have now, I'm going to back to my gp tomorroe and ask to have them biopsied as the nodes on my collarbone, under arm and breast are so obvious and its starting to get get very uncomfortable in my shoulder aswell as the back on my neck, everything crossed it's benign and that they will listen.  I think I have good grounds to request a biopsy or maybe even a 2nd opinion I'll let you know how I get on X

Hi there nikita; have been away for a few days.  Do let us know how you are doing.    I hope your GP is helpful and give you the help you need to resolve your discomfort and worries.  Annie

How did you get on please? xxx

Hi ladies hi Claire 

Well I'm I went to a symptomatic breast clinic and the consultant was useless he felt under rmy arm and couldn't feel it then said he would get me an ultrasound scan which I didn't want as I already had one the previous year which showed swollen lymph nodes and was told it's nothing to worry about, he very strange kept, all he kept saying it's nothing to worry about it's not cancer and I told him I wasn't there beacuse I thought I had cancer I was there beacuse the pain 8 months later was getting worst and even when I went to my GP originally I went about the ache under my left arm not my breast but he found them lump which they said was cystic breath tissue and I was happy with that, so that frustrated me, I told him I didn't want an unltra sound scan beacuse it will be the same as last time all clear and then discharged and then I would be back to square one again and he his reply was well if there any further problems your to will refer you back and I told him that's why I was there beacuse I'm having further problems and to see me back in clinic with the result and he actually got his finger and wagged it at me and hit it on my arm in gest gest and said I was a naughty one whatever that means and I had another ultrasound scan which was clear but did confirm again that I had swollen lymph nodes in my armpit. The day after I went anand had an ultrasound scan on my collarbone and I have swollen lymnodes there as well, but this time I recorded it on my phone everything that was said in the room as I tend to find what they say in the room isn't what they out in a letter and I'm glad I did, as soon as he out the Doppler on he said you have swollen lymnodes there small nothing to worry about and then wrote to my GP and said it was all clear no mention of the lymnodes he confirmed he found, at this point I was so disheartened and fed up I just gave up, but then I found another 2 lymnodes at the back of my neck one near my hair line which is the size of a gobstopper maybe bigger and a small superficial on at the back of my neck, I went my GP and she felt them and said it's not cancer beacuse your blood tests are fine, I think there more paranoid about it being cancer then me as I'm going beacuse I'm in pain on a daily basis with these bless the ache so bad, I explained that I used to work in a hospital and understood how it all worked and told her I know there isnt a blood test in the world that can test for cancer it can only be suggestive in helping to get a diagnosis not to make one, I told her I wanted a biopsy of the big one in my hairline and she's reffered me to ENT which I'll be seeing at the end of this month, so I'll keep you posted to this day the pain has got significantly worse my whole shoulder my neck, down my arm to my elbow and hands, it got that bad I've had x-ray and now waiting for an MRI as go thinks I've slipped a disc in my neck and it's my left side shoulder and arm that playing up so who knows I'm my on strong pain killers everyday which has only happens in the last 2 weeks,my left breast is also swollen, my lymnodes under my arm and neck have just got bigger and are still there today, I'm very tiered and low on energy, feeling quite sicky sicky hopfully they will figure out what it is soon X

I'll keep you posted about my entire appointment end of the month X

Hello again nikita; I have just caught up with this correspondence.  Your experiences sound pretty awful considering the pain you have been suffering.  It's like you are talking one language and them another!  I do hope you will have something positive to tell us before long.  Annie

Hello Nikita I have exactly the same symptoms as you exactly the same. I have night sweats around my chest area I’m in pain of my chest my back my lower back and my breasts they enlarged as crazy and they hurt !! I’ve been bleeding in my urine for quite long time now and the gp is telling me not to worry! I’m fed up with the neglected way that this country operates! I’m not fine and I’m not a psycho I know that something wrong with my body ! Could you please tell me what was your final answer if u did scan for mri? I’m anxiously waiting for your answer thank you hope you get better 

Hi Matilda I'm so sorry to hear you are going through something similar and please believe me I understand your frustration and the strangest thing is today I was going to write an update as so much has happened since my last post, please just remember be persistent you and not a psycho your right you do know your own body and you should deddefinit keep fighting until your Heard.  So in the summer of last year one morning I was spinning out bad it calmed down so I felt confident to drive Later in the day whisky driving I had a very strange feeling in my left ear with some sharp thudding nosises and tingling skipping down my arm, the ringing stopped and my face went numb and the corner of my lipped dropped, I went to my GP and they said I had an ear infection and gave me antibiotics, the go acknowledged the droop in my lip and said it may be a bit of cerebral palsy, the left side of my cheek and inside of mouth and around and behinde my ear was numb, I went to see an ENT surgeon this month and he he felt the lympnode  behinde my neck and asked about the numbness in my face he asked if the admitted me or did a head MRI I told him no and he shook his head in disgust and said I need an a head MRI and an FNA Ultra Sound Biopsy in my neck, he was awesome and I have them in a few weeks mean while while randomly speak to a neighbor about the feeling in my arm and ear and numbness in my face and he told me he had a stroke 2 months ago at 42 and said that was what exactly happen to him, I've been avoiding going to the doctor's with it as I have a head MRI booked and I'm guessing it would show up if I had, Then going in January this year I was poorly again but with my shoulder I was in so much pain that I was in tears, I couldn't sleep, They ordered me an MRI which I thought was for my shoulder but when I got there it was for my neck which my GP ordered for me, i avoided phoning for my MRI results for like 2 weeks as I was just worried they would find something. I called Friday last week and they told me my results showed an abnormality but couldn't see me until yesterday. So yesterday a GP told me that my spinal structures are fine which is fab no slipped disc or vertabrae but I had DIFFUSE MARROW SIGNAL ABNORMALITY, which I didn't understand what it meant then he told me that I have to have a special blood test called a film blood test to rule out any blood cancer, I'm going to Portugal this Friday so I said fine I get the bloods done when I'm back and he told me NO I had to have them done today, I asked what the urgency was and if this is the case why didn't anyone ring me and apparently beacuse it wasn't marked down as urgent, so I had the blood test yesterday and they were back the next day and I had to see the Advance Nurse Practitioner, I told reception I should be seeing a GP but thire response was they can discuss results, well turned out he couldn't and had to go and speak to the GP, when he came back In The room he told me that I need to be reffered to a hematologist and I said ok well what about my bloods and his response was they are porbably OK my friend literally shouted Probably as I did and I said nah mate not probably that's why I'm here for my blood results so what's the result he then said if I saw him yesterday he wouldn't have sent me for a film blood test but straight to a heamatolagist as he can't Interpretate those kind of bloods, He Told be that there were abnormalities with the film bloods my WBC is 8.1 within normal range just higher end and these were abnormal RBC 5.25 MCV 77 and MCH 24.4, so now have to wait to see the heamatolagist I'm mixed race and am a thalesemia trait carrier I'm hoping it's something to do with that but I guess I will find out and the MRI didn't show any abnormalities that's fitted my symptoms of pain in my shoulder, my mind is fried and I've not really got a lot of reassuring from the nurse as asked him if there were signs of malignantcies and he said No then followed the convo about the GP shouldn't have ordered these a heamatolagist should have beacuse they cant interpretate them so not sure what to think I'm just glad there finally paying attention and hopefully this 2 year battels will pay off who knwos all I can do is wait and I'll let you know the results, push to see a heamatolagist don't be shoved from pillar to post like me, it's been a hard journey but I'm still going good luck Matilda I hope this helps in some way X. 

PS I have blood in my urine all the time to and constant water infections the put a camera in my bladder and said all was good so have no clue why there blood always in my urine it's annoying Xx