Surely there must be more than this

Surely there must be more than this.

I was diagnosed AML-TP53 late 2021. cyTarabine and Venetolclax acheived remission by Jan 2022.

The cancer has returned to my bone marrow, my Stem Cell Transplant has been cancelled , I am off all chemo and the Dr. says there is nothing else that can be done. Prognosis is three months.

What can I do, is that it?

  • Why has it been cancelled? What can't you have more chemo, have you got a second opinion from another doctor. 
     

    I am so sorry to hear this. I wish there was something I could say to make you feel better. Always remember anything can happen at anytime. Your fate can change. 

  • I'm really sorry that you are going through this.  My husband had every treatment he could but before Christmas he was diagnosed with AML, apparently all the chemo, radiotherapy and immunotherapy had caused it, something that was never discussed until it happened.  It means you are susceptible to catching infections even when you are isolating, your body can no longer fight them.  He was admitted to hospital 29th December for intravenous antibiotics but caught covid whilst in hospital, unfortunately his body couldn't fight it.  Its terrible when you've fought so hard to survive.  My heart goes out to you and your family. Carol x 

  • Offline in reply to Sabr

    Its so weird, the shock of this on Monday knocked my wife and I sideways cos treatment was going so well and towards Stem Cell Transplant.

    Now I have a list of question for my next meet next Monday.

    I already phoned in for a referral and my medical records to provide to a specialist private hospital , although Macmillan and a hospital in Cambridge are supposed to be the best.

    I saw my GP on an unrelated issue today, he was shocked at my prognosis since he says I look so well.

  • Offline in reply to Dor06

    Thanks Carol, it is all so unbeleivable, done everything healthy all our lives, avoided covid at an OCD level, and now this comes out of nowhere. Only 71, thought there was at least 10 more years of miles in me.

    Thanks for sharing your story, that is so sad for you and your husband as he fought through all the treatment.