Hello Ricaroo1,

I'm sorry to hear that you are having to deal with these blisters and that you haven't found relief. I hope some of our members who have had similar experiences will pop by very shortly to offer advice but in the meantime, you might want to have a look here at this page from our website and hopefully, this will help a bit. 

Also, if you think that asking someone medically trained for advice might help, our cancer nurses will be happy to take your call. Their lines are open Monday - Friday between 9 a.m - 5 p.m on 0808 800 4040.

I hope you feel better soon.

Best wishes,

Renata, Cancer Chat Moderator

Hi Ricaroo - you poor thing - I'm sorry to hear this. I had this same treatment nearly 7 years ago.  I can't suggest any creams but I kept the soreness and blistering to a minimum by keeping the area aired and by not sitting on it at all - so keeping the blood flowing in that area.  In fact I didn't sit down at all for the whole of my treatment - I would lie on my side instead.  You could also ask them for some Installagel - its meant for internal soreness but it might work.  Incidentally I just popped onto this group after a long absence - keep going with the treatment - even when it's painful.  It works.  Good luck. x

Would the r1 and r2 radiotherapy creams and gels be any good? Just thinking out loud. 

Hi Ricaroo,

People with stomas can access a range of barrier creams and, more importantly if it hurts too much to put creams on, barrier spray. This is specifically designed to create a barrier against stool/mucus/urine and dries in seconds.

Because people have different skins, some sprays can cause a negative reaction but if you could experiment with a range, you might find one that suits.

I suggest talking to a stoma nurse at the hospital where you have treatment to see if they'd be prepared to give you a couple of samples.

Alternatively, you could contact a supply company such as Coloplast and buy some.

https://www.coloplast.co.uk/brava-skin-barrier-en-gb.aspx

They give out free samples but I think you have to have a stoma to get them.