Struggling to understand

My poor Dad has just died. I am really struggling with how much he suffered.  Thinking about it is so painful it makes me moan with pain. He had no food or fluids st all for 6 days. No one was concerned re this but I found it unbearable. He was skeletal when he died. He also suffered with intractable violent hiccups which the medical staff were never able to effectively control. He ended up with high doses of haloperidol and midazolam do that he was so sedated he was no longer able to communicate with us and appeared to be in a coma. We talked to him and sometimes his eyes seemed to open but we don’t know if he could still see or hear us. He got hiccups again towards the end and basically they continued, jerking the bed, until he died. His death was the worst suffering I can ever imagine. We helplessly watched this to the end unable to do anything to help or comfort him. How do we bear this? How do we remember him as he once was and not what he became. Please could anyone offer me some crumbs of reassurance or comfort? 

  • I'm so very sorry to hear about your dad, lclark7335.

    On behalf of all the team here at Cancer Chat, I'd like to offer you our heartfelt condolences.

    Whenever you feel ready for it you might want to have a read at this page from our website that addresses the many stages of the grieving process and I hope this can help you a little.

    Thinking of you at this difficult time.

    Warm wishes,

    Renata, Cancer Chat Moderator

  • Thank you Renata. Something else has started to bother me. My Dad while conscious, never had pain. Suffered with the terrible hiccups but no pain. So he did not have morphine.  Had midazolam and haloperidol. However when he was unable to communicate with us any more in the last 4 days of his life but he was very clammy, sweating with rapid pulse and breathing. I am frightened now that he was in pain and this was not recognised. Do the drugs he had help with pain relief too? 

  • Hi lclark, 

    We're not able to answer medical related queries but our cancer nurses may be able to help. You can make a new post about this in their section of the forum or give them a call during the week on 0808 800 4040 between 9a.m - 5p.m to discuss this in more detail.

    Kind regards, 

    Steph, Cancer Chat Moderator