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Stay Strong

17 Jan 2018 15:59 in response to Dor06

I'm awake again at 4.00 am and then three more times until the alarm goes off.  It's snowed so I defrost the car, sweep all the snow up and we leave by 8.15 am for surgery.  His hands are bad today and the cold doesn't help.  He's  had a bad night, shoulder pain, wrist pain and anything else that can be painful.  He drops me at zumba and I have a free hour to myself.  I ask him to put heating back on but he hasn't bothered so I have a luke warm shower, get a beef  stew ready,  make sure he's OK and go off for a nice time with my friend.  I arrive back home and he doesn't even say hello or have you had  nice time.  I finish getting tea ready, make him tea and biscuits and he let's me know he's not having a good time, whilst I have!!  Thirty minutes later he tries to ask about my day, but I'm past caring, it's too much effort to talk to him.  I'm now writing this and keeping my head down.  He's scared about not having had a scan and that none has been booked as of yet.  This cancer has a lot to answer for and our resources are being stripped away, little by little.   Cazx

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18 Jan 2018 11:31 in response to Dor06

My friend calls to say Let's meet for lunch in Barnard Castle,  I look forward to seeing you but life throws a curved ball at me again because there is six inches of snow,  we are housebound.   The only consolation is that we both sleep through the nigjt!  My throat is still bad and I am struggling to speak when I shout to my lovely neighbour thank you for clearing our drive.  So many people are kind and thoughtful but I can't rely on others all the time.  I sweep all the snow off my car,  sort the washing out, clean the cooker and just sit for coffee when hubby comes downstairs, I ,make him tea and toast and go back to my cold coffee!   He's getting upset over being left with no scan appointment and keeps extending the time he has  not seen anyone medical, it's now five momths he says, no it's three I tell him, that's still a long time he says.  It's true but that was the plan, but common sense has gone out of the window!!  We will hunker down for the day and stay warm I say.   The post has just arrived and lo and behold we have an appointment,  the 30th.  Only a few more weeks and we should have good or bad news.  See you tomorrow. 

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18 Jan 2018 22:08 in response to Dor06
Hi Caz. I find it difficult to reply as I feel so bad that you and hubby are having such a bad time when I who has terminal stomach cancer seems to be having a much better time of things. I have spoken before and tried to give my positivity to you. I have had 8 doses of chemo gone from 9 stone 6 to 11 stone 13 carried on working and going to the gym at 70 years old. All I can say is try to give yourself and hubby as much positive thoughts as possible and I do not understand why you seem to have problems with your nurses as mine are great. Have a word with the chemo department if you get no joy as they have helped me a great deal in James Cook and go to see Claire in Macmillan near the entra,nice she has sorted attendance allowances for me and my wife and got me a blue badge for the car ( which I feel so ashamed to use as I can run 100 metres in about 20 seconds so I wonder what people think when I park in disabled places. I am 11 months on from diagnosis and am determined that I will still be here in 10 years time to continue looking after my lovely wife June who is 80 just had 5 weeks of radiotherapy and is now feeling so much better she is pointing out the dirty marks I have missed when I clean the kitchen lol. Wishing you all the very best for 2018 and hope things get better for you both ❤️❤️

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19 Jan 2018 13:52 in response to Thebarbell

Just to say, I have not had "problems "  with the nurses as they are not  there!!  We atend James Cook for his prosthetic leg, not treatment for cancer.   Thanks for the thoughts and I'm happy all is going well for you. Caz. 

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19 Jan 2018 14:00 in response to Dor06

We both have a good night again and this helps us both.  I come down to make tea and my TV won't work.  I can't cope with no television! !  I change the batteries in the control, nothing, it won't work with the buttons either,  disaster!!  My lovely neighbour comes in and re-boots it and we have a picture.   What would I do without him?  Hubby has opened up his wound again and nothing is healing properly.  It's freezing cold and crisp and deep and even!  We will not be going far today.  So I'm sat watching a black and white movie and munching on a custard tart.  See you tomorrow. 

Stay Strong

20 Jan 2018 15:39 in response to Dor06

We are not in a good place today, or a good mood.  Before I say something about smoking related lung cancer and regret it, I'm keeping my head down and enjoying my own counsel.   See you tomorrow. 

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20 Jan 2018 18:15 in response to Dor06

Take care Caz, look after yourself. 

Stay Strong

20 Jan 2018 18:28 in response to Dor06

Hello caz.  I have just spent much of the afternoon and early evening reading all your posts.  Thank you for taking the time to do this.  I have not had cancer myself but have seen family and friends through it, including my mum (quite some time ago now) and the father of my son.  I have no amazing comment to make or conclusion to draw; just wanted to say thank you for your posts.

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20 Jan 2018 18:28 in response to rileyroo

Thanks for the lovely thoughts.  This forum is a blessing. Xx

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20 Jan 2018 18:32 in response to Annieliz

I appreciate your time and thoughtful comments.   It is harder today than it was ten months ago.  I can't even be bothered to speak to anyone, I'm sick of not being me. Cancer is a killer in more ways than one.  Xx

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20 Jan 2018 20:27 in response to Dor06

Could you do with a bit of a break, even just a night away might help?

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20 Jan 2018 23:11 in response to rileyroo

That would be lovely, but he won't admit that he needs help, so I can't leave him on his own.  It must be a macho thing. 

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21 Jan 2018 00:06 in response to Dor06

Pardon me for interfering when I have only just read your posts but could you present him with a fait accompli by having your daughter and her family (I read where they visited previously) arrive to care for him for 24 hours while you have a break.  Being family it would not be so bad hopefully!

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21 Jan 2018 15:04 in response to Annieliz

My daughters have offered but they live hundreds of miles away and have young children aged five and six.  School, jobs, husband's who work long hours and hubby would feel bad wrenching them away.  Today is a better day.Thanks for the advice. Caz.x

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21 Jan 2018 15:18 in response to Dor06

Today is a better day, apart from the  blizzard    I don't want to talk about yesterday as everything was against us and because I have been a little unwell myself my patience was stretched to breaking point.Lovely people on this forum have offered advice and thoughts and that helped me a great deal.  A good night's sleep and I feel calmer today and hubby,  although in pain is also happier in his frame of mind.  Because we don't know where we are with the effects of the treatment our heads are in a muddle.  We have to get through the next few weeks and even if the news is not good, we will cope with the known rather than the unknown.  Lots of tea, warmth and Sunday Papers are keeping us occupied, suduko for me, cross word puzzles for him.  Sister in law calls, nephew going in for op on his knee tomorrow so we will try and see him Wednesday.  Blood test results and wound checking tomorrow if we can get off the drive.  Hopefully my lovely neighbour will help, either without asking or if I need to.  It's snowing in Surrey but son in law has still managed a bike ride, he is competing in the French 1,200mile bike ride next month,  he raises a lot of money for charity and has to practice for hours each day.  Take care all of you I am content today and I can't ask for more than that.  See you tomorrow. Xx