Hi all,

My wife was diagnosed with appendix cancer (LAMN 2) following a burst appendix.  There is still some cancer remaining.

We recieved the diagnosis from her surgeon 3 weeks ago and whilst she told us what she could, she had very little information on this rare cancer and we are now awaiting an appointment with an oncologist to get information on treatment plans and prognosis. We were told it would probably take another 3 weeks, that was 3 weeks ago.  We phoned the hospital today and they said that she will need a CT scan 6 weeks post surgery from the original hospital - she's already 6 weeks post-op and the letter hasn't been sent yet.  We've been told it will probably be another 3 - 5 weeks before we get seen by the oncologist.  We then worry how long it will be before she gets scheduled for surgery.

Is this a normal waiting time? It would be 9 - 11 weeks following the first presentation of symptoms before we get to speak to someone who can give us any useful information. Is there anything we can do to speed up the process.  We've been advised to stay in the NHS due to the rarity of the cancer but we're getting worried now and our work offers private med-care.

All the time I can't help but feel that its giving the cancer more time to establish and from my reading early treatment is crucial in this type of cancer (potential pmp).

I'd be grateful to hear your experiences.

Many thanks in advance.