I've had a look through the forum and unfortunately, I can't see that we've had any other members post about this particular drug treatment.
I wanted to give you the links to Asthma and Lung UK (previously known as the British Lung Foundation) and to the Roy Castle Lung Cancer Foundation. As specific lung-related organisations you may have more luck in connecting with someone who has experience with this treatment.
You're also most welcome to call our team of nurses on 0808 800 4040, Monday to Friday 9 am to 5 pm. I'm sure that they will be happy to try and offer any advice, information, and support that they can.
I do hope you're able to connect with others soon.
