Sorry to all not replying but only just found the site agin

Sorry just found site and realised there was all reply’s when I went on my profile  

anyway thank you all quick update I had surgery 01/11/2017 but still need 6 weeks radiotherapy as was told there is risk of microscopic bits left I am shocked and in disbelief 

I just replied to someone’s post somewhere else on this site I’m not familiar how to use it get updates 

But who is like me concerned about effects and think I should wait and see but also I’m thinking it’s dangerous to wait and my head is all over the place I have six grown up children and seven grandchildren and another grandchild on way 

I know I’m told to think of my family but also because I suffer nerves and anxiety including health anxiety it’s making it hard to know what is the right thing to do 

arghh any help much appreciated 

thank you 

  • Hi Pauline

    I’ve not seen your other posts but I just wanted to respond to your thoughts on Radiotherapy. I’m also unfamiliar with this site and how to see replies  (and I find it so clumsily to use, it’s so hard to scroll and correct typosgrrrh )

    Before my partner had cancer my oer eption was that cancer was like a mike, a thing, in solace where you can see the edges. I don’t believe that cancer is that simple. It seems common that, when you look at a tumour there are microscopic amounts in the the cells around it. Blood vessels run around your body and these cells get into your blood that’s the scary part. 

    It seems that most people haveno side effects from Radiotherapy m. It’s like having a lot of X-rays at one time. You wouldn’t expect side effects from an X-ray would you? My partner has had red skin after her Radiotherapy and at times these have been sore (she’s had Radio to chest, ribs, spine x 3, shoulder and leg)  apart from the skin she’s had no problems (well it’s tiring traveling to the hospital).  I’ve given you all the worst parts, which aren’t that bad and the best parts? You could kill cells and prevent more tumours growing. It seems like a no-brainier to me. 

    You can prevent future problems or at the least reduce your risks considerably. I’d talk to your health  care team about the pros and cons. I suspect that they haven’t spent long describing them to you as most people jump atctge chance to kill any residual cancer cells. Tell them your concerns. 

    I know it’s all frightening but I believe it’s worth grabbing every opportunity of treatment. They are expensive and only offered if they think it will benefit you.

    Good luck

    Bryony 

    carer to partner with Secondary Breast Cancer 

  • Hello to you both ... it is a tad confusing when first on here ... but on the 1st page, there's a little bell near top right ... and it should have a number below it, if you have a reply on your thread ... press on it and your threads should come up , even ones you have replied too ... I know what you mean about spell check.. I have to 're read post as it changes a few words to something completely different ... can be inbarasing and I'm not the best at spelling any ways ...

    This is a great place once you get used to it ... you can ask questions, know your not on your own on this journey we find ourselves on ... and even have a good moan ... stick with it , you will pick up stuff along the way ... take care ... Chrissie x

  • This is how to get email notifications for your forum threads. 

    If you look near the top of any cancer chat page, you'll see a blue bar with your username at the end. If you click on your username, then a drop down menu appears. Select Account Settings.

    On the Account Settings page, you'll see a place to enter an email address. Make sure your email address is recorded there.

    Then further down you'll Notification Preferences.  If you select "Immediately" then you get an email whenever anyone replies on a thread you've started or replied on.  Other settings reduce the number of emails, including the "Never" option. Select whichever suits you best, then click on Save

     

  • Hi thank you that really helps and yes I’m going to go with it and just take step at a time 

    I’m going to be same travelling and hoping I can drive mostly myself or may struggle to get there sometimes and yes I guess it is like a lot of x rays at once my fear was dry mouth and sore and also hourse or no voice and not being able to swallow think got scared as they did mentionif to bad may need peg feed or something praying that like u have said won’t be that bad and I get through this

    how is she getting On now sounds like she has had a lot to and as u say it’s not cheap and they have said I need it 

    thank you again 

    pauline