Hi , you're not a fool at all. I haven't had any experience of what you're describing, just having a breast lump checked out at the clinic tomorrow but my heart went out to you. I also have beaten myself up fir not checking my breasts more regularly but we're all human and with life being so busy it's hard to focus & keep on top of health issues. I hope your telephone appointment helps you this evening and will be thinking of you. Sending you hugs xx 

All the best for your appointment today Scorpio4. And well done on being proactive about it!! 

I'm still having problems getting a referral (I'm in Ireland).  I didn't realise my GP didn't have my VHI details and the VHI doc can't do gynae referrals.  To top it off, last night I wanted to send my best to you and couldn't get on to the site, LOL.

Being the sort that's always been a bit "meant to be" I kind of thought I'm over thinking it and with nothing going right I should just take the Cerazette and see what happens.  After another night of flooding, and the Norethisterone not touching it I'm going to get back on to my GP this morning. Still, I'm probably just at that age :) x

Hugs Scorpio4, take it easy on yourself :)

Norethisterone hasn't stoppped the bleed.  4 changes of clothes last night and this week has gone in a blur of nothing.  My GP has wanted me to go to A+E all week, but I'd thought if I didn't need a transfusion and I could get the bleeding to stop then they wouldn't want to see me until I get the referral through. 

All my consultations have been by phone so no bloods taken.  The bleeding probably would have stopped me going anyway.....I'd have tried though.

TMI warning......I used to have pain on passing clots (they range from grape to lemon size).  No serious pain now and only once, that if it didn't stop I'd of needed a hospital.  Flooding is instant and through everything...I've spent the week on the sofa sitting on towels.

Just giving into I may well need more urgent help.  My GP was closed yesterday so I got onto VHI doc to see if he'd give me a script of tranaxemic acid.  I'll pick it up in the morning.  Surely the hospital would do the same?  He gave me an urgent referral to the A+E, the reception on my phone broke up and I lost the "what to do" part of the call.  Problem is I don't even know which hospital I'm to go to for VHI.

It's also not great that the hormones haven't stopped the bleed, so problem probably isn't them.

We've done covid since last February, moved clients to remote calls only, long before anyone told us to.  The last thing I thought I'd deal with is going into hospital.  I'm not worrying over it and don't have anxiety, just would rather stay away from it for my family.  Plus being in a very blessed position of being able to very happly avoid it, makes this the safest place.....much kinder to the head.

Surely name of the game here is to just get the bleeding stopped...wether that be in hospital or at home?  I'm not flying around the place but likewise my heart seems fine and I've no headache.  If I can get it stopped then I'll be seen within a few weeks for the why part of all this?  What else would a hospital do for me right now? 

I'm writing this as my diary.  I'm starting to lose track.  Just after I wrote the above I had a gynae consult.  Usual chat of, do I want the mirena coil.  Moved onto Provera from Norethisterone.  Bloods taken and the following week an internal US. Looking back I was very sick and breathless at the time.

Large fibroids seen on US. I was told nothing apart from that. The next day I had to go to A+E and was found to have a Pulmonary Embolism and put onto the blood thinner Eliquis. It was suspected as being due to the Provera and the Elquis was to be stopped after 6mths.  I realised I was tubbier than I'd thought and immediately went on a diet and lost 50lbs by Xmas bringing me to my ideal BMI.  The bleeding situation improved.

A week after being in the hospital a nurse who'd treated me rang to say I was low on B12 and would need injections every two days which I had for 2 weeks and then monthly.

I weaned off the Eliquis at 6mths and had to go back to A+E with chest pain and breathlessness.  I wasn't seen quickly, and whilst waiting, the what felt like dire situation passed as quick as clicking my fingers.  When I was seen I was told a pulled muscle or anxiety.  I don't suffer with anxiety over these things and the pain was no pulled muscle. 

The consultant who prescribed the Eliquis originally, had made a telephone consult for me in November.  This was cancelled.  My doctor, who doesn't want me off it, continued to prescribe. My next telephone consult is supposed to be the end of February.

I had an tummy upset in November and the same pain returned.  It isn't possible not to go to A+E.  The same chap who told me it was a pulled muscle the last time came into the room and walked out again. I was wheeled to another area of the hospital and left there.  After half an hour I collapsed.  When they took me through the pain had gone, just as last time.  This time they kept me in, although under a different consultant to the first time.

I was surprised to see this time I was being sent for abdo/pelvis MRI as pain was very definately under breastbone and to the left. The D dimer had given them no cause to MRI my chest again, despite the last being at the time of the PE 7 or 8 mths earlier.  Anyway they were very keen on pushing me into the box of gallstones and were delighted with themselves to find lots of little ones. They want to remove the gallbladder in 6 weeks (covid).  I don't think it's that but sign their form so I can get out. They want me off the blood thinners.  I'm feeling a bit lost as I've got numerous other sensations and odd pains going on as well.

I'm home a less than a week and find a lump in my left breast. My doctor made an urgent referral to a different hospital.  9 weeks wait with things being as they are. In that time my left arm has become very painful. Only for about 10 seconds at a time but numerous times of the day and night.

I was seen at the symptomatic breast clinic last Friday. I'm due back this Friday for the results of the biopsy.  The consultant has prepared me for the worst, will do MRI and bone scans, doesn't want me off the blood thinners and tells me to hang on to my gallbladder.  I'm feeling relieved above anything else that this man "gets it" For the first time someone is leading me in my health care rather than me trying to figure out if to stop the blood thinners for a gallbladder op I don't think I need.

Over the weekend my right arm started with the same pain as my left and I'm now finding it hard to get in or out of my clothes without triggering the pain in one or both arms. I have a band sensation around my left leg and a heaviness in my left back, both have been going on for probably 9mths. Also a sensation of things moving that I can only think are clots.  No idea.

So now I'm just waiting to see what Friday brings and already I'm thinking about the next wait to see how far this has spread.....all premature, I know.

Hospital rang this morning to call me in for gallbladder op.  Told them to scrub me off the list and get rid of the paper I signed letting them do it.  That would have been an 11 week wait instead of the stated 6 and the only reason they didn't do it at the time was because it was the then peak of covid.  If it wasn't for being seen at the breast clinic last week, I'd not have known what to do.  Safer on the blood thinners me thinks.

Biopsy results tomorrow.  Feeling very positive today. After getting my B12 levels up my arms are much better today. Washed the windows this morning which I couldn't have imagined being able to do yesterday.

My goodness you have been going through it all, l hope you have better outcome with the breast surgeon he  appears to have a an idea of what's going on, and is treating you as a person rather than a condition. I would avoid having your gallbladder removed as it can be removed later if required, or a gallstone becomes trapped in the bile duct. 
lve been tired and achy my b12 is low l started back on the tablets yesterday hoping that they work soon. Putting the washing out is a big effort. 
l hope you have your results soon and they are good, the breast department are good at looking after you do ask them any questions. Make a list they don't mind it's so easy to forget when you get there, or speak with them on the phone. 
Take care don't overdo the cleaning my husband is still doing mine after my recent operation, thankfully he's great. 
susie

Heading for a walk on the beach with hubby n dog for our 10th anniversary.

Triple neg and spread. Scans next Thursday with chemo to start the following week.

No surprise. They prepared me well. Chat l8r no doubt x