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Son receiving palliative care

14 Sep 2021 03:38

 

Hi

My 21 year old son is currently on a syringe driver receiving palliative care at home. My world is broken. He had his syringe driver put in 4days ago. 
He is on a very high dose of morphine.

He is slightly slurred, but still lucid. He was diagnosed in 2019 with oesophageal cancer and secondary met in his stomach. He now has a tumour blocking his liver and had two liver drains in.

He still remains his amazing caring funny inspiring self! My hero. 

 

Son receiving palliative care

15 Sep 2021 10:10 in response to Sammiekev

How are you doing? Xxx

Son receiving palliative care

15 Sep 2021 14:31 in response to Sammiekev

 

Hi Sammiekev,

I lost my brother when he was only 28 and know how devastating that was. My heart goes out to you and your brave and inspiring son.

You are doing an incredibly hard job by caring for him at home, but I am so glad that you are able to. It makes all the difference to those who are terminally ill to remain in the bosom of a loving and caring family, instead of in the hands of a hospital or other institution.

My thoughts and prayers are with you and we are always here if you want to chat.

Kind regards,

Jolamine xx

Son receiving palliative care

15 Sep 2021 17:09 in response to Maria21

Hi

It is so hard to say, I am fine one minute and not the next. This is so cruel. 
 

Son receiving palliative care

15 Sep 2021 17:11 in response to Jolamine

Hi

thank you for your message.

It is so precious having him at home. 
I am so grateful to be able to look after him. He is surrounded by his own things and the people he loves and who love him.

Son receiving palliative care

15 Sep 2021 17:44 in response to Sammiekev

 

Hi,

I know just how difficult this all is for you. It sounds as if you are a very strong and caring person. I hope that you are getting some help to look after your son at home and, that you have some good support around you. I am glad to hear that he is still lucid. Be prepared for this to change and, make the most of the time you have left with him.

I am always here if you want to chat/vent.

Kind regards,
Jolamine xx

Son receiving palliative care

18 Sep 2021 14:28 in response to Sammiekev

I'm sending you lots of love and virtual strength. I am so sorry to hear about your beautiful boy and glad he has his wonderful mum by his side. 
 

I'm in a similar position my 27 year old son was diagnosed 15 weeks ago with oesophageal cancer, previously he'd been fit and healthy and had his life's plans. I honestly cannot come to terms with what has happen - I just cannot believe how life can be so cruel. 
 

im so sorry to hear what you are going through 

Son receiving palliative care

18 Sep 2021 18:25 in response to Wirralmum

Hi

thank you so much for your message.

there are no words, when you are watching your child go through this. Your world is rocked beyond belief.

sending you all the strength you need.

 

 

Son receiving palliative care

19 Sep 2021 23:51 in response to Sammiekev

Hi

My son was on a syringe driver but his anxious broke 2 he is now back on oral morphine diazapram and cyclazine .

I uderstand how you say you feel ok and then dont Im living hour to hour I never know whats in store its so cruel and sad xxxxxx