Shy hello.

Hi guys, this is just a shy hello.

I'm a trying to find info about my son's diagnosis, which is made even more difficult by the fact that he lives in Sweden with his dad and step-mum.

He's 13, and I've been told it's soft tissue cancer.  But I have been shown a photo today of some paperwork and it says "treatment plan for stage IV patients with metastatic disease."

I take everything I see and read online with a pinch of salt, but that doesn't stop it from being confusing when looking for more info.

So any help would be useful.

  • Hi there ..

    So sorry your sons having to go through this horrible cancer journey ... and must be devistating for you being so far away ... 

    There's a free phone number for you to ring on here or McMillan have one too .. where you can talk to a qualified nurse ... they help answer questions on cancer all the time .. the line is open Monday to Friday so please don't wait for the week end .. I used them myself and they were amazing ... 

    Hope they are keeping you in the loop, and sharing what's happening ... your his mum ... and we all need our mum when wer poorly ....so sending you a vertual hug ... Chrissie

  • Thank you Chrissie.

    I'm feeling sorry for myself at the moment, I feel like my mum and sister have been told more than I have, or the same as me, just before I was told. (I know I'm being childish.)

    Would it be a bad idea to try and speak with my own doctor to see if he could put it all into context for me? Or should I just go over his head and speak to a macmillan or cancer research nurse? I don't want to be taking up their time when there are others in more urgent need.

  • Hi there ..

    I'm a bit lost at what to do ... as I don't know why they are not letting you know all that's going on ... but you are his mum , and should be told ...I can understand why you feel so low .. if you have a little info, you could always chat to the nurses here, or mcmillan. . Even if it's just to get it off your chest ... 

    I wish I could help more .. maybe call his dad, and tell him how you feel, and that it is your son too .. my thoughts are with you... I can't imagine just how you feel ... but a big hug from one mum to another ..

    Good luck ... Chrissie x