Hello Frankie and a warm welcome to Cancer Chat, 

Poor you, you've been through so much recently at such a young age and I am so sorry to hear you were admitted to hospital with neutropenic sepsis. I hope they looked after you well there and that you are feeling a bit better now. 

How unfortunate that you've had really low levels of neutrophils for about a year without knowing. It's probably not surprising to you in hindsight that you developed chest infections, thrush and mouth ulcers during all that time.

At least it seems like you are having all the tests required at the moment to find out exactly what is causing this. I hope that you won't have to wait too long for your results and many members of our forum are going through this at the moment, waiting for results which seem to take forever. The anxiety that goes with this uncertainty can be enormous and difficult to bear and there are helpful tips on this page to help you cope while waiting for important news. 

I hope that you will hear from other members of our community who have had a diagnosis of neutropenia before and that they will be along shortly to share their story with you. Blood Cancer UK have detailed information on neutropenia which may be of interest to you. 

I know it's really hard but as you are waiting for a diagnosis, try not to anticipate the worst if you can or look up anything online as it will make you even more worried. I hope you will get more clarity soon on this and do come back here if you get a chance to update us on what you find out. 

I also had a little look on the forum for you for past threads from other members who have been affected by neutropenia which you might wish to have a look at and/or respond to. I found, for example, this thread from last year by [@Tinkerbell]‍ 

Our nurses are also available on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm if there is anything you would like to ask them or talk through with them.

Best of luck with your results and best wishes, 

Lucie, Cancer Chat Moderator

Thank you for the support and providing some possible community members to reach out to. 
 

I have reached out to Charlotte and am discussing my situation with her. 
 

thanks 

Frankie 

I am so glad Frankie that you are now in touch with Charlotte and discussing your situation with her. It does help to have other community members to reach out to so you feel less alone at the moment. 

We're all here for you! 

Lucie