Scared of what the future holds.

Hi dont really know where to start and i apologise if it makes me sound selfish.  My dad has mesothelioma diagnosed this time last year, in the last few weeks he has really gone down hill and the chemo he had this week to help with the pain has left him not being able to even hold water down, He is saying that he just wants to die and doesnt want any more treatment.  I know that this has to be his choice and both myself and my mum should back his decision.  But until this all reared its ugly head my dad was my mums primary carer she has a really bad heart and terrible pain in her spine, leaving her housebound unless she is taken out in her wheelchair.  So now that will be down to me, which in its self i am prepared for as both of them have been fantastic parents and i wouldnt see them having to go into a home.  But it means moving from my home with my husband and daughter to live at their house (which was my childhood home)  I feel that i am giving my home up and going back to live with my mum, it will be her house her rules etc and i have not lived at home for nearly 30 years.   I know this sounds awful but the house isnt really big enough for us all without living on top of each other, so my suggestion was to sell both and buy a  home that has an annex that we could all live in without being on top of each other.  But then the question of my brothers inheritance comes into it,  they seem to think that if we do that when my dad goes and then in time my mum i will have to either remortgage to buy him out or sell and move to a smaller house again.  Has anyone else gone through this upheaval ontop of all the stress of dad and have any suggestions on the best way to go.    Sorry to ramble on but feel like I am on my own with my head exploding

  • Hi and welcome to the forum though, of course sad to see the reason you are here. Dealing with a Mesothelioma diagnosis in the family is not easy (my husband struggled with this cancer for nearly three years and the palliative chemo, though making him feel none to good, did give us longer together).

    I actually cannot begin to imagine how hard it must be to have to consider uprooting your own family to have to care for your Mum, at the same time having to watch your Dad's health deteriorate. I would not presume to offer advice on how you should all move forward but the one thing my husband was very clear on is that he wanted to stay in the home he had worked hard to provide for us and we managed to do that for him. If all your family are in agreement as to what happens as regards moving/coping with both your parents and they are happy too, then perhaps it would be an idea to get some impartial advice as to how legally protect you all for the future. To be honest we coped day to day with changes in my husband's condition and had community nurses to help when I needed it.  Our children were great support but it was important for my husband to see them having a normal life. 

    I hope you can find a good solution to a very difficult situation and that time will be on your side to reach what it right for you all.  Wishing you all the very best. Jules54

  • thankyou for your reply, its just nice to find a site that can give advise and not tell me how selfish im being not wanting to uproot my teenager daughter.  My parents would be ok moving but i feel that my dad needs to be in the home he has lived in with mum since they were married after that maybe we can think again just feel like my life is being mapped out for me without any imput from me.  Everyone just decided that as i am a housewife i would take it all on, and no one seems to realise how hard it is for me to see them both like this x x   thankyou again for this site at least i dont feel like i am alone.

     

  • Hi

    I am sure you and the family will reach a decision to help everyone but the forum is always here if you need to share your feelings. Sometimes I found it just makes my head clearer when I get things down in writing. It will be an emotional time for you all. Take care.Jules