Scared

I have had   leukaemia for 2 years now and my husband has looked after me all the way.. we go everywhere together and just have each other. He has now been diagnosed with stage 3 throat cancer. Treatment starts next week. I am terrified how I am going to cope looking after him when some days I feel so ill myself. Family aren't interested. I feel so alone and scared I don't know what I will do if he leaves me alone. It sounds selfish but we are always together. My beloved little dog died last year also and I still miss him so much. I have worked for the NHS most of my life and know only to welll what we have to face. I keep getting told stay positive but I don't feel positive just sad scared and tired.. 

  • Feeling sad, scared and tired is a feeling many of us know all too well! But don't let it overwhelm you.

    I think you need to try and put in place some additional support. Even something as simple as a single short telephone call a week.

    There are volunteer services in our area for anyone feeling lonely - local hub (details on council website). But given the cancer you could also contact Macmillan to get specialist support from a cancer adviser/support worker/nurse.

    You really need to look after your mental and physical well-being given all you have going on. Leukaemia makes for a lot of tiredness.

    Be kind to yourself - pampering treats.

    It can be really hard when we already feel low to build contacts, but do try and grow a few shoots so you do not feel more alone when your husband is having treatment.

    Take action early. Maybe make a phone call to someone today. Build at least one contact so that you feel less isolated.

    Take care. Sunny x

    PS You can also contact Carer's UK. They can help you sort out additional support too.

  • Hi Paddington 123.

    We are in similar positions to you, my darling wife of nearly fifty years has parkinsons and Alzheimers has had it a few years, I'm on palliative have been since February 2016, i do everything around the house the wife can't stand without someone holding her or a hoist. 

    As sunny says there is carers UK or carers first, don't know if it's same thing or not. 

    Also get in touch with Dr to see about Marie curie or macmillan to help including some house gadgets to make things easier for you both. 

    Good luck with your husbands treatment. 

    As you've been told keep positive thoughts and actions. 

    Billy 

  • Billy, sorry for jumping onto your post but I have been looking for help and saw that you had written something about being on palliative. My brother has been diagnosed as having advanced cancer in his intestines and they are offering palliative chemotherapy. Is that what you have been getting for four years? We have not spoken to oncology yet as we only received this news last week. Thank you, Deborah 

  • Hi Deborah. 

    Don't worry you can jump on any post that's the idea of the forum we all try to help each other like a big family. 

      Yes I'm on palliative care since February 2016 I'm on permanent hormone therapy which can be increased or decreased to help my prostate Cancer keep low, I've only had chemotherapy at beginning of treatment and not needed any more yet, it alot can depend on type of cancer and if its spread, really you need to wait (i know its hard to do) for oncologist to give you all the details about your brother an any options in treatment.

    Wishing your brother and you all the best. 

    Billy 

  • Billy 

    Thank you for your reply. Yes we will have to wait until we speak to oncology although part of me doesn’t want to know! It is advanced and has spread. He is well just now and I am doing my best to feed him good food and keep his mood up. Thank you for your good wishes. All the very best to you