Hi Julia, 

I'm really sorry to read that your abdominal mass turned out to be a sarcoma and additional lesions have been found on your lungs, liver and spleen.

I know you've been looking in to your diagnosis so I just wanted to let you know that our cancer nurses are only a phone call away if you would like to find out more or just chat to someone about what you're going through. Their freephone number is 0808 800 4040 and are available Monday - Friday between 9a.m - 5p.m.

For the moment just try to take each day at a time and remember that we'll be here to support you on your journey.

Kind regards, 

Steph, Cancer Chat Moderator

Hi julia, 

we seem to have the exact same thing going on, I’m going in tomorrow for biopsies if my liver and other tissue, my tumour is in my abdominal wall to the left of my navel, diagnosed last week following intense pain, biopsies and scans,  bit more waiting for me to do but let’s kick sarcomas butt together!! 

Carh x 

Hi Cath, 

Thanks for replying, I've been all over the site and there doesn't seem to be many sarcomas about!

Mine is also on the left but not sure yet where it's attached as I've only had the diagnosis over the phone and no one has yet gone through the ct scan with me. Hopefully that will happen next week. 

So far I'm not in pain apart from the odd stab in the back round about where my spleen is. Of course it could be radiated pain, who knows! But as it doesn't last for long it's manageable. As soon as its not, I'm after the Drugs! 

Yes, absolutely lets kick sarcomas butt. I have "affectionately" called mine Ripley. I'm not sure what that says about my coping strategy, but unless someone shouts "section" I'm sticking with it! 

Julia x

Hi

I have sarcoma that has spread. Originally had hysterectomy as thought to have fibroids but was cancer. Have had 1st chemo, 5 to go then more scans.

I am feeling positive and am slowly realising that it is what it is and am trying to 

get on with life although I feel exhausted not only from recent treatment , but also 

I have deficits from brain stem surgery 4 years ago (benign carvenoma removed )

mainly balance and fatigue deficits.

Hoping to beat the *** out of this........wishing the same for you all

Donna

Thanks Steph :) 

Hi Donna, 

This morning I felt really alone - not because no one cares, far from it, the outpouring of love and concern has floored me, but because sarcoma seems to be really rare and I thought no one else would have the same experiences as me. But after reading yours and Caths posts I feel much more encouraged. And although I also feel in a little bubble, I'm looking ahead with a bit more certainty. After all, if we are all walking on the same path we aren't alone are we? 

Julia x 

We are certainly not alone, and I’ve named mine too he’s “Fred” lol x 

Julia,

Thanks for your reply. I get what you mean about feeling alone,I feel it too although like you I have lots of love and support. Last night, out of the blue, my shoulder length hair started to come out in huge clumps. I knew it was coming but the shock I felt really floored me. Tonight I’m going to get my husband JIM to give me a cut with the hair clippers and bandana at the ready, deal with it. I’m keeping in mind that it’s temporary and hopefully it will be just another inevitability dealt with.

My 2nd chemo session is Tuesday and I still have 4 more after that so hoping nothing else falls off or out

Thinking of you Julia

Best wishes from a very cold but lovely Glasgow ️

Donna

Donna, 

I had a chat with my friend about hair, mine is already short but I going for a preemptive strike this week and taking it a bit shorter. She told me a friend of hers lost her hair and it grew back much stronger! So you never know, you may end up looking like the LOriel advert Win win

I've had many happy holidays in Scotland, but I bet you have a quiet laugh at us soft southerners in London with out 2cm of snow! 

Take care,

Julia

Cath, I hope the biopsies went well today, I've been thinking of you

Julia 

x